Did you find a lawyer. If so, can I get the name , if usa wide?

You should be treated with respect and consideration regardless of your age -& especially so with your illness . Chronic illness is very hard on partners, family and friends - & I see mine slipping away every day, the longer my CP & illness goes on. If you're unable to work (like me), can you apply for a disability pension ? Also agree with the above -u need outside help and support . Perhaps your doctor could help if she /he is supportive . It's hard enough living this way, you need external help . Good luck Ellen.

I understand how you feel and it is not right of them to treat you that way! The way they treat you shows disregard for your feelings, your pain and a total disrespect of you as a person! It is considered a form of neglect and if they are doing this to you, then as hard as it may be to, you need to tell someone what they are doing to you and have someone outside of the family try to help! I am 26 now and my own mother treated me the way you say they treat you and I can honestly say I wish I had told someone about how I was being treated before, because not saying anything almost killed me! My family neglected me to the point I almost slipped into a coma and died and I couldn't stand if i knew that happened to another person! You have a legitimate problem and whether they are sick of it, or not, you didn't choose to be this way and they need to respect you and your pain as it is, the fact that they aren't doing that means that there is a serious rift that needs dealt with, so please for your own sake and safety find someone, a counselor, a social worker, someone to help you, because you are worth it and you deserve to be treated with respect and heard just like anyone else!

I'm working with a lawyer on disability money all my doctor's pass the buck to other doctors .... This site is my sole source of support or validation like when I've been bed bound for 6 months barely eating cause I can't move my jaw the response I get everywhere is that I'm not doing enough, but coming here people validate that I kept myself alive despite the negativity I have towards me in life