We must be heard regarding our pains compassion too

We must be heard regarding our pains compassion too

I remember , when I first started on my journey from drs, I felt in my 30s no one listensed to me. until my obs bloods tested this were 20 years later, drs realised I had fibromyalgia and my back needed a consultant osteoarthritis and carpal tunnel joint pains, so never give up you know your own body what pains are around you,

A MyChronicPainTeam Member said:

Hi Terri I read your story and it's sad. How about going to pain management. They can help with pain ans they will also give you medication so you don't suffer. All I can say if you do go see pain management and you so get treatment you will feel great. The only thing I suggest. Make sure you still do everything in moderation. Cause doing to much all at once will be felt in 2 days and you would also b extremely exhausted. Then if it's too much pain the pain killers will not be as affective. I learned the hard way. I took the medication and went to pain management and felt great and I started doing everything. But that was my biggest mistake. So please if anyone is reading always do things in moderation. Hope all goes well for you and God bless 🙏😇🙏

posted about 1 month ago
A MyChronicPainTeam Member said:

I believe we must all be pain advocates. Doctors sometimes don't listen or run enough tests. I always ask a lot of questions and my doctor is kind and sits down with me to discuss.

posted about 2 months ago
A MyChronicPainTeam Member said:

I can agree to that completely, LorraineChristinaspark, the message [Never Give Up] really needs to be an approach to all those chronic pain sufferers who don't have an aprropiate diagnosis they can live with yet. I also had years and after many very frustration und humiliating appointments with many docs who just didn't listen to me bevore i got my final diagnosis at a pain specialist. I can only highly recommend to all who suffer from severe chronic pain to not get help from any other dr. than pain specialists, they just don't understand what 24/7 pain means; they may make certain tests etc. but that's all they do, if they can't find the right diagnosis or treatment they just treat you like "too bad for you, but you just have to live with that, cope better with that...". I had so many nervous breakdowns after those visits when you go to a new dr., full of hope getting better treatment, and they just treat you like crap. SO: Anyone readiong this, listen to LorraineChristinaspark's aproach, don' give up, never give up, go straight away to the next dr. if you were treated badly! MAKE THEM LISTEN and don't believe their ugly, disgusting message you JUST HAVE TO LIVE WITH THAT (24/7 severe pain)!

posted about 2 months ago
A MyChronicPainTeam Member said:

We must listen to what our bodies are telling us they know what's wrong with it.

posted about 2 months ago
A MyChronicPainTeam Member said:

I too went through the same thing!! Doctors saying, "There's nothing wrong with you, You just don't want to work!!" Pain 24/7, feet swelling out if my shoes at work!! Headache so bad, I can't see!! Temples swelling that throb and you can see it!! It took 30 yrs to get a diagnosis of Lupus and fibromyalgia!! Then after breast cancer and a mastectomy, 2 yrs later after my last bone scan, both my oncologist and surgeon, came in to tell me that I needed surgery on my cervical spine or I would be paralyzed from the neck down, immediately!! Now, can't get any pain meds and I have to deal with this pain every day, with no relief!! This is crazy!! Creams, rubs, CBD oil, none of it stops this pain!! Now my cervical spine needs surgery again!! I refuse to do it!! It is too close to my brain stem!! That was in 2009, right before I had my ICD implanted in my heart!! Now, I can't get an MRI, due to the leads are metal, during my battle with breast cancer again in 2017!! In order to get radiation, my doctor removed the ICD!! BUT ,the technician said my leads prevented me from getting it!! But, I can't get any relief!! I am so tired of the pain!! Thanks for letting me vent!!

posted about 2 months ago
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