I have been living with CRPS for years. I am terrified as I know I have got to have something done as my teeth have been neglected and I'm having some major problems. My doc said she will work with a dentist to explain RSD-CRPS and how it may impact my condition. Now I have to find someone who will do the work and it may mean multiple extraction. No Money and most dental is NOT covered. Anyone have experience with this or know of denists in MAINE that have experience with this? Thanks. I'm… read more
I had all my upper teeth extracted in July. I have dentures that are still being "fitted" with new lining every 3 weeks and doing better now. Medicare added some dental coverage and I was able to… read more
Because my body don t react normal on input and sensces because i have chronic pain and neuropathic pain i am afraid to take implants by the dentist. Has anybody got dental implants and how did it go ?
Thanks all the answers give me a lot of comfort to go for it ! I have 3 to go.
Greetings from Holland
🌷💓🌷
I've just been reading about neuromodulation also known as Spinal cord Stimulation as a treatment for chronic pain and wondered if anyone has had opportunity to try this? Its not a widely available treatment. I live in the U.K. where there are 1 or 2 specialist places you can go for the treatment. The Walton Centre is one of them. They implant an electrode or drug delivery system near the spinal cord.
I assume it is helping you is that Correct ? I too am interested in one
My Dr. is talking about putting in a pain pump & changing me from nortiptolene to gabapantin. All would be used in combination with the spinal cord stimulator. Please understand that my body is the exception not the rule. I suffer from crps in my back, left lower leg (just below knee), & in my left foot. I have had 7 surgeries on my leg/foot already. I have to go see a cardiovascular surgeon on the 30th. I have decreased circulation in my leg/foot. Also, my foot has a purple tint to it. Worst… read more
I have my second SCS implanted now. The first one migrated out of the pocket and it was NOT GOOD. The manufacturer is Medtronic as well. Also with have u ever been on gabapentin by mouth before? Many… read more
Know not which is best...though I need to get dental implants. Personally, I would do it all at once.
Yes Brenda I can’t sleep so well as I feel as though my legs are breaking it’s awful jolts we get and all the rest of fire is unbelievabley pain off the charts 🤗🤗
I have a friend who thinks that I am putting it on, when I say that I am in pain, as she just says, well you look good, are you sure you have pain, this really hurts me inside. Do any of you have friends or family who think that the pain is in your head?
I’m not sure where this comment fits in this discussion about people thinking pain is in your head, but truly what other people think of you is really none of your business. My daughter said that to… read more
I get for two years Percurtaneous Tibial Nerve Stimulation for my overactive bladder ( not funcional urge ,loss, bladderpain ) ones in two weeks in a hospital . It is a little electro needle in my leg who stays 30 minutes in contact with my bladder nerve. Today they cold that i can do a pilot and treat myself at home after a course with injecting the needle. Does anybody treat her or him self with PTNS and how are your expiriences.
Bedbound is nasty but thats also not nice always your catheter with you and never go out for a walk again. I have pudendus nerve damage luckley i can walk 1 or sometimes 2 miles but the pain was / is… read more
My husband told me that Pres. Trump said he’d like to do away with half of all pain meds use! I’ve been on pain meds off and on from 21 to mid 30’s since I had received approx. 20+ surgeries in that time. Then 20 years ago ruptured L-4 and L-5, L-5 S-1. Pain was unbearable . I’ve been on them straight since then , Oct 21st at 1:10 pm ,1997. You don’t forget the date that changed your life. I’ve been treated like a drug seeker all my life on meds. Once and awhile you’ll find a dr who knows pain… read more
Hey Kiddo, Believe half of what you HEAR and all of what you SEE!! If Trump wants to be president--he knows--the drugs are for street use. That is what he wants to stop. We have to believe in… read more
How do you get your motivation back after a long fight with pain. The feeling of giving up when nothing seems to go right? When those you talk to say they don't wanna hear it anymore? When you have so much that needs done but your body won't cooperate and you feel overwhelmed.
Hello, and sorry your suffering because I suffer so much it is for 2 or 3 people
The pain, I have to take a narcotic, and if they do not work. I go to 911 because I can not control the pain. I have… read more