If so how do you cope with the pain that changed your life!!! I don’t know if it’s just me but when I was told we are trying to deal with your pain and give you some quality of life back 🤔really are we to feel so much better to live with health issues I mean it just can’t be me that knows by your Drs saying that to you that you actually feel so much better and still dealing with pain, quality of life back sounds like it should be said to the patients that even though they are suffering they’ll… read more

Is it wise to taper off of gabapentin slowly? My prescription is far above the studied dosage, and have experienced some confused thought process...i.e.) losing words, short term memory loss. I've been on it for several years, but my condition has worsened and is better controlled with another med.

Because I have a few other conditions, that may be life threatening. I can't get the doctors o focus on my pain.

To be frank I don't care if the other things kill me, if they don't relieve the pain life isn't worth living anyway.

Anyone else had this problem, how did you get the doctors to understand.

Does anyone else feel that they are getting worse pain increasing feeling a bit anxious & paranoid.
The control you usually have to manage what is wrong is just slipping away. Doctor does not seem to understand "Well it's a degenerative condition" & you worry that the day will come when you are out of options
I think winter is probably worse for this. Folk say you will be fine!! NO you know what I wont be "fine" I will never be fine again. What do others do when they hit rock bottom?

I've tried 10 years to heal, find a way, keeping the Hope but at this point i realized that my pain never go away, most of my young ages wasted in Dr and hospital and Physical therapy.now i realized my pain keep get worsening by age, there are some kinda surgery but you habe to repeat them time to time, that comes disability and and and
im thinking about suicide quite some time, i dont believe in hell or heaven, dont have kid and wife, free like a bird. but in Pain. i dont wanna live with fear,… read more

Hi

I am unable to work due to the Pain and Fatigue , Tiredeess , Everything wrapped in to one
I am on a regular basis , feeling guilty if i have half an hour worth a almost pain free time

Do you work ?

If Not , do feel a sense of Guilt ?

Do feel that you should be at your old job?

I ask this a lot but how do cope in life any advise?

I Ask this because i cry and get very upset and recently feeling very suicidle, Its Horrible and you all feel it ,

i Await your response

How can maintain a sense of hope when there isn't any left. I've exhausted so many different medications for nausea, vomiting, pain, I feel like a human science experiment. Doctor after doctor... there's nothing left I can do for you. I have pelvic adhesion disease, andometriosis and Allen masters syndrome. I'm in pain constantly, pain meds only make it tolerable and I'm on nausea medicines they use for chemo patients and none worked except one until my body got to used to it now it doesn't work… read more

We all rest. I am almost professional at it. I awake some times feeling well rested, other times I am immediately ready to go back to sleep again.

How do you get your motivation back after a long fight with pain. The feeling of giving up when nothing seems to go right? When those you talk to say they don't wanna hear it anymore? When you have so much that needs done but your body won't cooperate and you feel overwhelmed.

Do you feel that your illness has completely taken over your life? This year has been nothing but hospital appointments and Doctors,I am really fed up with it,how do you cope with the situation?.