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IN doing some research I have found out that there are. 3 out of 6 siblings(mine)that have RSD...7 OUT OF 10 Aunts also have it...not including cousins.....THIS IS ON MY MOM'S SIDE OF THE FAMILY
So I'm wondering if it runs in anyone else's family...
It's a question to make your brain hurt.......think about all the old folks back in the day diagnosed with arthritis...
SPANKY
My wonderful dad passed away with ALS. He worked at the Pickering Nucleur Power plant here in Ontario for 31 years as a ironworker, and was diagonsed when he was almost 62 years old. He died on Xmas… read more
Has anyone advice for me like a tasty savoury meals.i can eat. Thanks 😊
Thanks Terry miles. I thought your message were lovely too. Thanks 😊
Chelper yes hidden pain disability others say you look well . Your mum should have been able to see your not as well have a disability. Until others walk in our shoes they don’t know how we feel.
I’m curious to know for all my family out there, what music do you listen to when coping or trying to connect with your higher power? If you don’t have a higher power, what do you use to connect with yourself at the deepest levels?
That's a good question, I try to listen to music and does not connect me with any spiritual guide that I need. I go to church and I don't find the spiritual guy there either I Believe in the Higher… read more
Does anyone feel like all you do is get in the way and slow everyone else down? As though everyone wants to get somewhere yesterday and you can't do so until tomorrow and so they are all ready and waiting at the door and you sometimes just end up passing on the trip, or activity, because you are still trying to get on your shoes and coat, so to speak.
Yep. I’m of no use to anyone so out of sight, out of mind. They forget that we gave our whole lives to them.
Yes Brenda I can’t sleep so well as I feel as though my legs are breaking it’s awful jolts we get and all the rest of fire is unbelievabley pain off the charts 🤗🤗
OH MY... I accidentally had it in my MOUTH. It's called Burning Mouth. Well, duh. It is a great weight loss program. The only thing that has helped, along with the nerves in the mouth it affected… read more
I'd love to hear about your experiences and journey with this medication. How's it going for you?
thank you for sharing. I did not know about this.🤞❣️
Yes, I have in 2015
If so how do you cope with the pain that changed your life!!! I don’t know if it’s just me but when I was told we are trying to deal with your pain and give you some quality of life back 🤔really are we to feel so much better to live with health issues I mean it just can’t be me that knows by your Drs saying that to you that you actually feel so much better and still dealing with pain, quality of life back sounds like it should be said to the patients that even though they are suffering they’ll… read more
When we are in constant pain, our minds deal with situation through distraction. This is why you may find yourself being more forgetful (where are my keys, why did I come in this room). I have… read more