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I have sjogrens and have a lot of weird tastes in my mouth and not sure as I have metal, burning etc but have constant ulcers in my mouth and esophagus.
I live in Massachusetts as well and I have Hyper Mobile Ehlers-Danlos Syndrome as well as Vascular Ehlers-Danlos. What’s up?
First post 👋 Hi all! So, it took years to be diagnosed with Celiac but that isn't my issue. I have the same helpless feeling because there is something secondary going on that no one can seem to figure out. Doc thinks it could somehow be connected to Celiac and I believe that. Not much is known about it honestly. The current diagnosis is the all-encompassing, vague one of Fibro. I do see a Rheumatologist and I've had all the bloodwork and MRI's, etc done regularly and nothing can be found. It is… read more
Yeah. That is what I was thinking as well! I forgot to mention I have sores on tips of toes sometimes, always cold (big change for me), skin splits/cracks on knuckles, between fingers and rash up… read more
I've tried dry mouth spray, mints hard candy and drink constantly and nothing words. My mouth gets so dry my teeth stick to my lips. Any help or ideas are very much appreciated
Biotene toothpaste & products are helpful.
I often feel so alone cuz there's not much support out there for people like me. I have primary sjogrens disease
Yes Lita we are a family team here.we can give help yourself suffer with cryps..I do feel for you.take care here's a hug.🤗😘
What is it? Does it have side effects?
My dry mouth has affected my teeth. I've had a lot pulled and will be getting a partial. I carry a bottle of water where ever I go or my mouth is so dry that my tongue sticks to the roof of my mouth! There's no fluid in my eyes and my vision has been affected, not by the Plaquinol. They're very sensitive to light and hurt. RA and spinal stenosis and diabetes go along with this. Just so frustrated and depressed. There is a young goofy person inside this body!
My mouth, lips and tongue stick and I am a sahara desert. I always have to have a drink with me. I also have gum. I just get tired of having a dry mouth. I get awake during my sleep to get a drink out… read more
I would appreciate any and all personal accounts of suffers of sjogren's syndrome please.
How to be properly diagnosed... symptoms... treatments...and any other illness that piggybacks with it such as fibromyalgia, arthritis etc ...
Thank you in advance.
Not just dry eyes and mouth it can affect any mucous membranes so dry vagina is also common. It has been treated in a similar way to RA if there are connective tissue markers. Therea something… read more
I have now injured my left knee. I have been unable to walk due to major injuries to my feet. I have injured big toe joints and have hardware popping out of one foot. Left and right joint pain, Lower disc issues. I have sjojgrens disease so eye problems and no saliva and peripheal neuropathy in all of my feet and fingers and legs.. you don't heal. MY husband is no help and sometimes want to end my life and be done w the misery
@A MyChronicPainTeam Member hello to you from Maroochdore and I hope you are feeling better today
Hugs from Judyxx
As already stated, in addition I have fibromyalgia and Sjogrens, pain in hips.
Me too. I try to make the best of it. Use lots of pillows.