Chronic Pain

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9 medium

Even after improving my overall pain, hot baths still cause issues

Even after improving my overall pain, hot baths still cause issues

After getting out of a hot bath (even slowly), I have some intense aching in my ankles, sometimes knees, and I feel dizzy and out of breath.

Could this just be the water is too hot? Has anyone had issues with this as well? At it's worst I thought I was going to collapse/faint.

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A MyChronicPainTeam Member said:

Its a vegetative reaction says my fysiotherapist i have it too. Your body reacts on all the senses. Thats why i don t take a bath anymore when i was… read more

posted 1 day ago
5 medium

What treatments have you tried for neuropathy?

What treatments have you tried for neuropathy?

I have been told I’m on the only medication available to treat neuropathy. I currently take lyrica, cymbalta and generic tegretol. Does anyone know of any stronger or more successful treatments?

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A MyChronicPainTeam Member said:

I've been on 3 types of antiinflammatories the knees tordal I'm on a narcotic pain killer which now doesn't work. Can't take muscle relaxers they make… read more

posted about 8 hours ago
3 medium

Pregnancy & opioid

Pregnancy & opioid

Hi all has anyone any suggestions on what to do about been on opioids and wanting to start a family . My wife is in opioids for the last 5 years over failed neck surgery .

We were advised that we also have to go down the ivf route and time isn’t in our side . Has anyone any suggestions on what to do . We’re afraid over the risks to the on born baby with the opioids ,Because they list so many different side effects and also the possibility of birth defects : Plus the baby could also have to… read more

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A MyChronicPainTeam Member said:

I would have your wife slowly wean off the opioids prior to pregnancy and try CBD products. Meditation is helpful as I have used it successfully while… read more

posted 5 days ago
8 medium

Is anyone with Ehlers-Danlos Syndrome willing to talk with me?

Is anyone with Ehlers-Danlos Syndrome willing to talk with me?

I have suspected EDS and am awaiting official diagnosis, but I am coming to find that I feel extremely alone in this as even my partners don't quite understand what I am dealing with. This has been a wonderful community of caring, understanding people, but I would very much like to connect with people who have been diagnosed with or suspect they may have EDS and perhaps learn more about living with it as even regular chronic pain tricks don't always… read more

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A MyChronicPainTeam Member said:

Leigh'
There is no cure.
Make sure that you avoid lifting weight.
To protect your skin, make sure that you are using the right type of sunscreen.
Make… read more

edited, originally posted 7 days ago
8 medium

How do we handle trauma with our pain conditions?

How do we handle trauma with our pain conditions?

How do we ...... deal with traumatic events while being so sick and/or in pain.

8 days ago my significant other died from an abdominal aneurysm, age 52. It took me over 2 days to find out as no one thought to find me. Unfortunately after trying everything and everyone for answers, I googled him. Imagine the instant grief and shock to read his obituary online. I was already so sick and he was finally home from a very long recovery from a broken femur.

How does… read more

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A MyChronicPainTeam Member said:

Sorry for your loss there will be a time of grieve after that you can do EMDR treatment you can restore traumas in another part of your brain so that… read more

posted 8 days ago
1 medium

has anyone ever used illegal drugs for the pain?

has anyone ever used illegal drugs for the pain?

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A MyChronicPainTeam Member said:

Weed isn't illegal anymore I find cbd is good to help relax and with my anxiety but I haven't found a good strain for the pain. There has been days I've… read more

posted about 8 hours ago
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Do you have a stimulator ?

Do you have a stimulator ?

Do you have a intern stimulator ?
from witch provider ?
How went the operation ?
How many percent is the pain gone away ?
Witch abilitys did you get back ?
Do you use less meds ?

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A MyChronicPainTeam Member said:

@A MyChronicPainTeam Member
Depending on where you have your CRPS depends on the type of stimulator. If it affects upper body, they give you a Spinal… read more

posted 5 days ago
1 medium

What next??

What next??

So after years of various pain meds at various strengths my body has decided to react against anything more than paracetamol . So my GP tells me all they can offer me Graded exercise programme and nothing else.
I’m already fairly active and have lost 2 stone in weight (1 more to go).following a modified diet. I try not to stress about the pain and try hard to keep things normal but sometimes it’s really hard. My son suggested cannabis.
Has anyone got any ideas/suggestions for me please

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A MyChronicPainTeam Member said:

I've done cannabis for my pain in my head it does work with amounts of CBD and alittle THC but it made me really tired.

posted 6 days ago
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