How Do You Lift Yourself Up From Feeling Hopeless? | MyChronicPainTeam

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How Do You Lift Yourself Up From Feeling Hopeless?
A MyChronicPainTeam Member asked a question 💭

How can maintain a sense of hope when there isn't any left. I've exhausted so many different medications for nausea, vomiting, pain, I feel like a human science experiment. Doctor after doctor... there's nothing left I can do for you. I have pelvic adhesion disease, andometriosis and Allen masters syndrome. I'm in pain constantly, pain meds only make it tolerable and I'm on nausea medicines they use for chemo patients and none worked except one until my body got to used to it now it doesn't work… read more

posted August 26, 2016
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A MyChronicPainTeam Member

I am sorry I didn't look at your history but it was like reading about myself at times. Can or have you tried marijuana consumables for nausea ? Wish I had that realistic option. Anyway there are A FEW doctors doing "good" work with adhesions but as the best told me, it's a still not where it should be but he DOES do his best. He is in Germany ( me in US) but frank!Ly at the time I had the money and it was cheaper for me to pay him cash, by far than cash for a US surgeon and hospital! If you wish to share email regarding what or who are yes & NO regarding adhesions I will be glad to share, I have been dealing with this for over 20 years.I can truly empathize and I am so sorry.

posted April 16, 2017
A MyChronicPainTeam Member

I know what you are saying!! Life sure is not fair. I have lost sight in an eye that was not treated right and then they finished it off because they knew they were wrong. Drs protect themselves. Hospitals protect themselves. They omit or out right lie on their medical records. Even with a witness no lawyer will touch a Dr or hospital system. It is a disgrace!!!! This is on top of my WC fight that never ends. I know it is so hard to find hope!!! For me, I try and put it in God's hands. "Vengence is mine sayith the Lord. I will repay".

posted September 29, 2016
A MyChronicPainTeam Member

That's why I smoke a little bit of marijuana, and my Pain management doctor has no problem with it. It takes my nausea right away It's not foe everyone, but for me It's a miracle

posted September 23, 2016
A MyChronicPainTeam Member

I don’t have your disorders but have been dealing with severe chronic pain for 17 years. The meds are horrible. Honestly the best medical treatment by far has been the medical marijuana hands down, better than any narcotic. I have full body CRPS and at one point I was on daily morphine 400mg and fentynal 400mg and it’s was like taking Tylenol, it did nothing. I’ve tried everything from bippity boppity boop... to alacazam from these doctors. If it’s not available in your state you can request Marinol , it’s the oral form of medical marijuana prescribed by physicians. That’s what I started with, this is filled by a regular pharmacy. And it helps with appetite and pain. Wishing you the best. 🙏

posted January 5, 2020 (edited)
A MyChronicPainTeam Member

I suffered from Endometriosis for years and opted for a total Hysterectomy......never been sorry. I have many other health problems which will only get worse with time. I have been on Vicodin for many years. When my pain is not as bad I don't take the next dosage although that is rare. I find that taking the pain med with extra strength Tylenol keeps me moving along. Pain? Yes! I treat my pain like a toddler, yes, I see you but, I am busy. If the pain increases I say to my pain that I am in control and make the decisions. Somehow, that works for me. It's really all I can do for the rest of my life.
I think it is a shame that people have to suffer. With so many people addicted you would think that help would be on the way. Let's build pain control, not weapons.

posted November 10, 2018

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