If You Have An Intrathecal Pain Pump (Medtronics) How Long Did It Take Before You Found The Right Dosage Level To Make It All Tolerable? | MyChronicPainTea

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If You Have An Intrathecal Pain Pump (Medtronics) How Long Did It Take Before You Found The Right Dosage Level To Make It All Tolerable?
A MyChronicPainTeam Member asked a question 💭

I have a Pain Pump for 14 months now and we are still adjusting it and I do not have the relief I want or rather the pain is not tolerable yet. How long have you had yours? How long until you found the RIGHT mix?

Help

posted December 12, 2016
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A MyChronicPainTeam Member

PhyllisHeaton,

I always hate that part, asking for an increase in meds. The more I use to seek relief the foggier my brain gets and the sleepier I get. Not to mention in me it depresses my breathing too much at higher doses.

But if it's needed do it and don't wait, just go in with eyes open if you get my meaning.

Mark

posted December 28, 2016
A MyChronicPainTeam Member

Keep fighting and keep positive!

You know we are all with you.

Mark

posted December 27, 2016
A MyChronicPainTeam Member

Good morning. Things have fallen apart for me pain wise. Pain doc actually told me that the dilaudid won't mask the pain much longer. Have to search for underlying cause. He's sending me for in motion X-rays concerned MRIs missed cyst on spine or back cancer. Need to rule out. Or we fast track to surgery. Amazing how things change here. J

posted December 23, 2016
A MyChronicPainTeam Member

Good Morning Louise,

It was a bit invasive. The insert the pump into the abdomen off to the side, then run the tubing under the skin around to the spine. That is where the real risk is as they burrow leads into your spinal canal, anchor them in place and then attach the tube. Viola it is done.

Now it's 3 days of bed rest and light movement watching to make sure the patient does NOT have a leak of the brain/spinal fluid (same thing basically). Main signs are the worst headache ever, that makes migraines look like mosquito bites and a pus exuding from the spinal incision. I had some of those symptoms but was lucky. A massive jolt of caffeine via soda, espresso and JOLT Mints helped snap me out of the problems I was having.

The average is 3-5 days before you are walking and moving. You will have to be slow and careful for a while, but it's all based on the individual's stamina and how far they were beaten down by this insidious disease/condition.

Hope that helps.

Be safe and Pain Free

posted December 19, 2016
A MyChronicPainTeam Member

BINGO! That happens a lot, but I also get worn out too as my legs don't seem to want to work right anymore. Holding my 262lbs frame up with mostly my arms and my walker is not exactly easy.

I know many others have it worse than me, but still for me, I'm at a real low point.

posted December 16, 2016

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