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Real members of MyChronicPainTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Been Told They May Have M.E /CFS And Feel As Though Their In Limbo Land Now.

Has Anyone Been Told They May Have M.E /CFS And Feel As Though Their In Limbo Land Now.

Has anyone been told they may have M.E /CFS and feel as though their in limbo land now. If so While you were waiting where did you turn to for support/advice as you technically still don't have a diagnosis .

A MyChronicPainTeam Member said:

I have been dx with SEIDS which is the new name for CFS/ME .I was also dx with Fibromyalgia.I was sent to see a internal medicine dr at BC women's hospital as there is a complex disease program .I would look into seeing if there is anything like this in your area if not I would do some research on internal medicine Dr's in your area.

posted almost 5 years ago
A MyChronicPainTeam Member said:

I've been undiagnosed for over 35 years!

posted 6 months ago
A MyChronicPainTeam Member said:

do u have pain all over every day? do u know the name of the Boston internist doctor

posted almost 5 years ago
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