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Has anyone been told they may have M.E /CFS and feel as though their in limbo land now. If so While you were waiting where did you turn to for support/advice as you technically still don't have a diagnosis .
I have been dx with SEIDS which is the new name for CFS/ME .I was also dx with Fibromyalgia.I was sent to see a internal medicine dr at BC women's hospital as there is a complex disease program .I would look into seeing if there is anything like this in your area if not I would do some research on internal medicine Dr's in your area.
I've been undiagnosed for over 35 years!
do u have pain all over every day? do u know the name of the Boston internist doctor
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