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Real members of MyChronicPainTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyChronicPainTeam Member asked a question 💭
Calgary, AB
July 6, 2017
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Answer Summary

Members shared deeply personal experiences with considering amputation for CRPS, with the overwhelming consensus being that amputation would... Read more

Members shared deeply personal experiences with considering amputation for CRPS, with the overwhelming consensus being that amputation would not eliminate the pain and could even worsen it through phantom limb pain or by causing the CRPS to spread to the amputation site. Several members offered practical alternatives, including physical therapy, water therapy, strength-building exercises with resistance bands, daily walking goals to reduce swelling, and treatment at specialized clinics like Spero Clinic in Arkansas, which reportedly has an 80 percent success rate in pain management. A recurring theme was the emotional struggle of living with chronic pain and mobility limitations while holding onto hope for future treatments, with members encouraging each other to stay strong and keep fighting together as a community.

A MyChronicPainTeam Member

The problem with amputation is you could still have pain from phantom pain or for nerves being cut. The CRPS could just move to the cut site. It just isn't a good option. If I knew I would not have pain, I would consider it. I would look into physical therapy, maybe water therapy. You have to get your leg and foot moving to get the swelling down. Your foot acts as a pump to get fluids out and swelling down. I used the big rubber bands they used in physical therapy. Put one under your foot up by your toes and pump your foot back and forth while laying in bed. This will really help build strength and get the swelling down. Make it your goal to walk a little each day if you can. Good luck

July 7, 2017
A MyChronicPainTeam Member

Yes I’m not going to but it’s harder to deal with the pain for life and I just recently posted about what happened

March 22, 2020
A MyChronicPainTeam Member

Do not do amputation it just damages more nerves spero clinic in arkansas has 80 percent success rate of rerouting nerve signals getting you out of pain

February 29, 2020
A MyChronicPainTeam Member

I agree with Jim. God bless

July 29, 2017
A MyChronicPainTeam Member

Yeah I feel same way as they all are looking at me thinking I'm being ridiculous and a joke and I guess I have to go along with it to suffer and live with wheelchair and hopefully soon to get scooter to be able to get out more often

July 13, 2017

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