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How To Respond
A MyChronicPainTeam Member asked a question 💭

How do I respond, if at all, to this message? This comes from someone I love. I do not want to hurt them, but they just don't seem to understand.

posted November 23, 2017
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A MyChronicPainTeam Member

What an idionic pat answer. Chronic pain isn't something you can wish away, you can't walk off the pain and merely thinking your chronic pain is going to improve simply because you "think" so, doesn't make it SO! People who don't suffer from chronic pain themselves have NO IDEA how it feels to be in constant pain 24/7, 365! Ugh! If someone were to hand me a card with those words on it, or spoke them to me, I'd simply say to them, "so you honestly think that if I simply wish my chronic pain away I'll miraculously no longer have my 24/7, 365 pain? OMG, don't I wish it were that simple, because here I've sat, for the last 7 years been crying my eyes out and I simply didn't have to suffer needlessly?! All I had to do was think I'm not in pain?! Wow! You're a frigging miracle worker! Why didn't I know that?! Get the eff away from me you effing moronic dweeb! etc., etc...smh

posted November 29, 2017
A MyChronicPainTeam Member

tactfully tell them you dont have a battle with your body, you have a chronic illness.....

posted November 25, 2017
A MyChronicPainTeam Member

How to respond. They may not have meant it meanly, I was told something similar 25 yrs ago,when I was on pain meds and it helped.The brain is a powerful tool.I don't know how good I can explain this and I can't type very long,but here goes,If I am thinking I hurt,divert and stop that thought,look at anything and think how pretty or soft that looks..concentrate on how beautiful something in life is, the sky,a smile.I have hoped everyday for 25 years that I will wake up with no pain,does not happen,will probably not happen,but I still hope.Learn what and how things you can do,I cannot walk in my bare feet ever,I can vacuum but can't sweep,Always have to pretend I am holding an orange under my chin to stop my neck from flaring up.Always sit on left side of vehicles.Little things that make a difference and don't send me into a flare up.Still hurt but learn to look away from it.I do have pain cream for when it is real bad and I need relief bad but no pain drugs for 20 yrs.Was not easy but was worth it. Can't type anymore,hope this helps. Cold here but the snow looks beautiful on the branches .

posted January 29, 2018
A MyChronicPainTeam Member

I think they are well-meaning and a simple thank you is all that needs to be done. Their reality is not yours. Hang in there!

posted January 21, 2018
A MyChronicPainTeam Member

I think the person is well meaning; but doesn’t fully understand your situation. I’m a Christian and believe God can and may decide to heal anyone at anytime; but it’s in his time. While I’m waiting for him to heal me (and everyone else who suffers from pain and health issues) the pain and mobility issues are still there, it’s for real! Your loved one doesn’t seem to understand this & has probably not had an illness or injury that’s lasted a long time.
I would never tell someone just to pray & then they’ll be healed. Her giving you this was not being supportive of you, but I don’t think they know it hurts not helps. I’d suggest telling them this. Otherwise you may get more of these messages☹️
I think this message is too generalized, for sure it’s offensive to someone who knows their having pain and suffering. You don’t want to be experiencing it. There is such thing as getting wore down and losing that optimistic, outwardly upbeat approach to life’s situations; but you’re not causing your pain by your thoughts, it’s real, it’s a physical manifestation of disease in the body.
God bless you & please don’t forget you’re not alone, even when it seems like it. Just come to this site, seems everyone really understand’s chronic pain and how it affects our lives...

posted January 12, 2018

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