I have a friend who thinks that I am putting it on, when I say that I am in pain, as she just says, well you look good, are you sure you have pain, this really hurts me inside. Do any of you have friends or family who think that the pain is in your head?
Yes, they think I should be all healed by now but they don’t understand what is wrong with me and that I have nerve damage that cannot be healed.
I know my mom understands where I'm coming from because I made her visit my doctor when she started showing symptoms that I had. She ended up with Lupus after he did a skin test on her rash. I didn't get a rash like her and I was recently confirmed as having fibromyalgia. I think it still gave her a reality check when she went to the disability hearing with me and my attorney. She has an open-book type of face like me and she couldn't hide the emotional reaction. But I still have people ask me why I was filing for disability. And I get that look of "Really?". I really don't care to defend myself against ignorance but I will discuss it with people who actually care.
A lot of people think we all have it in the head and not the body, so be it...karma rolls round every so often.. Wish it was all in my head then I could take 1 pill and cure it instead of the 20 I take.....I do have people who didnt believe I was sick but with end stage ra im crippling so u can see it....its a lot of hurt feelings but u learn to deal, cut those people out if they make your heart hurt and go on....
That's what the doctors said to me one day that my pain is all in my head! Until you look at my chart and said that he couldn't take me on as a patient because my case was too complicated for him! Like really!
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