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A MyChronicPainTeam Member asked a question 💭
Estero, FL

Also have transverse myelitis Told knee replacement and back operation

June 24, 2018
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Answer Summary

Members shared mixed experiences with spinal cord stimulators for managing chronic back and knee pain, with some describing life-changing... Read more

Members shared mixed experiences with spinal cord stimulators for managing chronic back and knee pain, with some describing life-changing relief that enabled them to stay active for decades, while others reported complications including device rejection, worsening pain, and limited support from manufacturers. Several members emphasized the importance of exhausting conservative treatments first, completing a trial period to assess effectiveness, and trusting your medical team before committing to surgery. A recurring theme was that results vary widely from person to person, but for those who found success, the device was described as essential to maintaining quality of life and mobility.

A MyChronicPainTeam Member

I've had a spinal chord implant for the last 25yrs, one of the first in the country and its been such a life saver. I've had 2 replacement units and I wouldn't be without it to be honest. If you want to know more or anything specific please ask

June 28, 2018
A MyChronicPainTeam Member

Limited yes but not as a result of the stimulator. The stimulator enables me to do things by blocking some of the pain signals. My problems are with permanent damage to my back and nerves predominantly (in its simplest form anyway)
I we are all different with different challenges but I can honestly say that I've not looked back after having my stimulator. I think if I hadn't have had it put in I wouldn't be here today. Don't get me wrong there are days when nothing helps but it's been such a tremendous help for me.
My advice would be to try other things and do everything you can to ease your pain before having any operation but if you can say that you've tried everything then have the test procedure and if that helps great. It's still a big operation but I trusted my consultant and it was one of my better decisions to have the stimulator fitted.
If there's anything you want to ask me please do if it helps you make a more informed decision.

June 28, 2018
A MyChronicPainTeam Member

I am just considering a trial of the Boston scientific interstim with high and low frequencies. The way the doc explained I will be able to do all the activities I used to before Pain - mountain bike, white water canoe ski lap swim yoga.
What is your feeling about activity after interstim.

June 25, 2018
A MyChronicPainTeam Member

I fell the same I wouldn't be where I'm at without the pain pump

July 1, 2018
A MyChronicPainTeam Member

I have to try some other meds first, but they were definitely considering it awhile back and I got scared I couldn’t ride horses and do yoga. Tell me, are you limited in any way?

June 28, 2018

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