Hi I have extreme pain 24/7 and I take Oxycodone when needed on top of all my other medication including Zomorph ect does anyone else take Oxycodone and how does it effect them?
Thank Gail

Has anyone been told they have Neuropathy due to side effects from chemo treatments such as Vincristine? After speaking with two professionals from a children's hospital where I live that the drug Vincristine is directly linked to survivors having Neuropathy as part of one of their after effects late effects from cancer. I don't know 100 if this is why I am in pain now but it is certainlly possible.

Has anyone been experiencing sharp pains or just overall painful feet the more you walk/stand on them? What about really sore toes that feel stiff and or hurt or burn? I feel burning tingling it my toes especially when I try and bend them. The more I try and relax my feet and move my toes my feet burn. Just wondering if anyone else has these issues?

How do you get your motivation back after a long fight with pain. The feeling of giving up when nothing seems to go right? When those you talk to say they don't wanna hear it anymore? When you have so much that needs done but your body won't cooperate and you feel overwhelmed.

I know that they are bad people out there, but we are not one of them, and yet we get treated like we are bad, because we are in pain and what helps us is being decided by people who do not feel what we do

I’m curious to know for all my family out there, what music do you listen to when coping or trying to connect with your higher power? If you don’t have a higher power, what do you use to connect with yourself at the deepest levels?

A few months ago I have noticed I have a phantom itch that mainly occurs in my legs where my pain has been. I have no dry skin there or a rash of any kind sometimes it itches like crazy especially in my knees. Anyone else have this?

The ability to build up our teams with people from our geographical area is available and encouraged. Has anyone ever gotten together for coffee, drinks or a fun activity like a pot luck style picnic?

Does anyone else feel that they are getting worse pain increasing feeling a bit anxious & paranoid.
The control you usually have to manage what is wrong is just slipping away. Doctor does not seem to understand "Well it's a degenerative condition" & you worry that the day will come when you are out of options
I think winter is probably worse for this. Folk say you will be fine!! NO you know what I wont be "fine" I will never be fine again. What do others do when they hit rock bottom?