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Do you fight or accept the pain

A MyChronicPainTeam Member asked a question 💭
Amersfoort, NL

A few docters told me to accept the pain and that i not have to look for furders options to heal.I go up and down in accepting.How are you dealing with acceptance and how works that menthaly for you .

November 28, 2018
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Answer Summary

Members shared deeply personal perspectives on whether to accept or fight chronic pain, with the overwhelming consensus being that acceptance... Read more

Members shared deeply personal perspectives on whether to accept or fight chronic pain, with the overwhelming consensus being that acceptance does not mean giving up but rather involves acknowledging the pain while still actively searching for relief through medication, meditation, breathing techniques, physical therapy, and alternative treatments like cider vinegar or CBD rubs. Several members described practical coping strategies that have helped them manage daily, including visualizing pain as a separate entity they can control, using apps for guided meditation and self-hypnosis, pacing activities with rest periods, and treating pain like a misbehaving child that needs boundaries rather than constant attention. A recurring theme was the importance of not letting doctors limit hope or define your experience, staying mentally strong through positive thinking and self-compassion, and finding small moments of empowerment even on the darkest days when pain feels overwhelming.

A MyChronicPainTeam Member

@A MyChronicPainTeam Member
I should have mentioned to everyone that when I do Meditation at home, I always do it lying down and usually when I get into bed each night. First and foremost it's necessary to be comfortable. If I go to sleep in the middle of it - then it has done it's job, don't you think?

January 16, 2019
A MyChronicPainTeam Member

Many times I have had to lay down and work on mindful breathing and meditation from my bed, as this is one of the few places I can find the most comfortable positions. Remembering the we are not the pain, it is not our definition, we are experiencing the pain can lead to a gentler relationship with it. This is not to say that the pain goes away but it can be held more compassionately and in that experienced with a bit less intensity. As with all things the tighter we hold on the stronger they respond.

January 4, 2019
A MyChronicPainTeam Member

I accept I will always have pain, but I have a right to function as much as everyone else too. I won't b going quietly into that dark knight.

November 29, 2018
A MyChronicPainTeam Member

@A MyChronicPainTeam Member, my heart goes out to you. I've been there recently, I cried bucket-loads when all other avenues of treatment fell through. I've tried so hard to get some semblance of a life after this medical condition started 3 yrs ago - my pain is constant and severe nerve root damage (L4-S1 lumbar radiculopathy), only to be told the same thing. Now that the doctors have decided that I have "chronic pain" there's been a big shift in attitude from them so they now act towards me as though it's all in my head and have been told that I can't live on pain killers for the rest of my life. Without them, I can't walk. It's earth-shattering for me as I expect it was for you. I've done this journey very much alone except for the good people who are a part of this support group. All helpful and meaningful advice I have received from here also.

I found that "loss" of the spinal cord stimulator (SCS) plummeted me into great despair and depression. I've had suicidal thoughts for 6-7 months now since they took out away the stim trial and took away hope. I came very close to ending it all at the end of October when I heard that funding had been withdrawn for the SCS. Finally I am getting help from mental health specialists and they have been appalled by how I've been treated. I'm taking life one day at a time now, and that's my advice to you. Hugs, Kathryn.

November 29, 2018 (edited)
A MyChronicPainTeam Member

Once u just accept what doctors tell u it immediately puts a fence around you and ur confined within a smaller space. I strongly believe in not taking everything they say as gospel and listening to what my body tells me and it's been my way for a long time now. If I'd just taken what my GP said I honestly believe I wouldn't be as well and fit as I am today. It's a case of doing as much as possible on good days and relaxing more on bad days. THIS IS MY ETHOS!

January 11, 2019

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