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Real members of MyChronicPainTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Tests Did People With MS Have To Go Through To Be Diagnosed?

A MyChronicPainTeam Member asked a question 💭
Calgary, AB
May 27, 2019
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Answer Summary

Members shared their experiences with the diagnostic tests for MS, with many describing the nerve conduction study (often called an EEG or EMG... Read more

Members shared their experiences with the diagnostic tests for MS, with many describing the nerve conduction study (often called an EEG or EMG in the thread) as extremely painful, involving needles or electrodes and electric shocks to measure nerve communication, though several emphasized that patients can refuse this test if they choose. The overwhelming consensus was that an MRI or CT scan of the brain is the definitive diagnostic tool for MS, as doctors look for lesions on the brain rather than relying solely on nerve testing. A recurring theme was the importance of self-advocacy, being mentally prepared for appointments, and knowing that while MS typically appears in younger adults, late diagnoses do happen, and the community offered prayers, hugs, and encouragement to those navigating the uncertainty of testing.

A MyChronicPainTeam Member

Don't let them do the muscle test. That's a choice!! Although Drs act like it isn t. MRI is the only real way of diagnosing MS. They will or won't find lesions on your brain.

June 7, 2019
A MyChronicPainTeam Member

I hate that test. It does HURT.

June 16, 2019
A MyChronicPainTeam Member

The test for m.s is a brain scan . A ct scan or better yet would be an MRI scan . Good luck with that

May 29, 2019
A MyChronicPainTeam Member

An eeg is used to measure damage to nerve cells , it can be done with acupuncture needles for deeper nerves , most commonly used are topical pads that stick to you , it requires 2 pads or needles they then send an electrical charge through one pad and measure what comes out the other, it's supposed to be mild , for me it was extremely painful. But I'd do it again if need be. Take care

June 9, 2019
A MyChronicPainTeam Member

They have done nerve biopsies on my legs (my biggest problem is I usually cannot feel my upper feet or toes) Ive been told it is my back causing it, neuropathy, now they are sending me to a neurologist for some 2 hour study and I suppose then they will go from there. I'm 56 and from what I hear St my age it's unlikely although I know some they found it late in life. I wish you the best.

June 9, 2019

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