Does Anyone Have Chronic Si Dysfunction? | MyChronicPainTeam

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Does Anyone Have Chronic Si Dysfunction?
A MyChronicPainTeam Member asked a question 💭

I feel so alone. Nobody understands my pain. Most days its unbearable. Been deal with this for a year and a half with nothing more than advil 4x a day. If you have it, what do you do help with the pain?

posted November 29, 2020
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A MyChronicPainTeam Member

Unfortunately j have found the very same here in Dublin Ireland. And now i am 63, I have been told the same, nothing more medical or medicine can do for you. To which I replied "no matey you do not get off like that, I am your patient, and you will treat me properly). He is still looking at me but I have another appointment. I was diagnosed with Fibromyalgia on top of everything else in 2004. It does get me down and I have gone the Sucicicidal route, but I have decided to keep going, I'm not giving my life up for any Doctor, hang in there. Your life is worth more than the Doctors. My.heart and hugs are with you. Sincerely, Tim

posted July 14, 2021
A MyChronicPainTeam Member

I totally agree that doctors are indifferent to our pain and wish we would go away. Yesterday after I told my doctor that I couldn't endure the unremitting pain anymore she responded: "Medicine has nothing more to offer you." She didn't care at all that I was nearly suicidal with so much pain that I can barely stand, walk, sit or perform simple daily functions. She just didn't care.

posted January 27, 2021
A MyChronicPainTeam Member

What you're experiencing is ineffective treatment for your pain. Sometimes sharper pain it just keeps gnawing away I would think it is difficult to treat. There is usually something it will effectively treat pain. It could be something like dexamethasone. the trouble is these drugs can you have quite serious side effects and put a damper on the immune system and of course the adrenal glands and so doctors hesitate to use those drugs. But in certain situations they're highly effective. Or long acting glucocorticoid anti-inflammatory localized injection using a guided needle injection under x-ray to specifically reach an exact area that is painful. I have aching pain in my legs from sciatica which is nerves being compressed due to a low back injury. The aching is extremely severe and can alter one's entire life and it can make you feel like you have the flu compounded by 100 *. However all I simply need is a narcotic pain medicine that is effective for severe pain and I'm fine after that. Codeine Vicodin those types of drugs are not strong enough to be helpful for me. I have to be on oxycodone morphine methadone and these are the strongest pain medicine and I require them. If I don't get the medicine I need it can make me feel like my life literally has reached its conclusion and essentially I'm like a horse being put out to pasture I have to be put down euthanized put to death that's the only option I have if I don't have powerful narcotics. Living with severe pain is not living. However I knew there was help for me and it was one of these powerful narcotics and still I force the situation and as long as I got the drugs that I needed I knew I could go on living in my life would be just fine and perfectly normal almost. I've had doctors look at me and treat me like they could care less about my pain and belittle me like I should be able to live with this pain the reality is you can't and you shouldn't because it's cruel and you'll end up having a stroke heart attack or kidney damage if you don't get the pain treated. Some doctors would prefer you just have a stroke or a heart attack rather than just be healthy and pain-free. You need an advocate that will stand by you in demand that you get help. Don't give up. I'm not sure exactly what your condition is but you need to get help for it. I'm really good person when it comes to pushing through The Impossible. I'm willing to be your Advocate. I want you to get help and I'm willing to stand by you. Please don't despair I want you to feel well.

posted January 23, 2021
A MyChronicPainTeam Member

Thanks for hugs.Whats si pain?

posted January 22, 2021
A MyChronicPainTeam Member

Bottom line is get on real pain meds.I take methadone but oxycontin is good too.Avoid morphine it has nasty side effects.ok honey.

posted January 18, 2021

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