Hi Gia.
I get the frustration. I've had creeping, expanding neuropathy since 2002.
I had my first stimulator in 2007 and it failed from misplacement. No one would admit that though at the time.
I had a new pain mgmt Dr in 2014 and he spotted the problem quickly, but it took 2 more years of X-ray and CT retrievals to prove it only failed because it wasn't placed correctly to start with.
After replacement in Feb 2016, it worked like a charm.
All that to say it can help if done correctly, but it doesn't cover everything. Immunoglobulin treatments did the most to reverse damage, but that was limited and required continuous treatment to maintain the gains. Perhaps if doctors could just agree on the cause it might be better addressed. I'm back in re-diagnosis right now (since July '23) without clear causes, just a change back to a previous med to manage symptoms without any word as to what's the cause.
It's a slow progression and spread, but definitely spreading since immunoglobulin was stopped in July.
Truth be known, they need to go back to researching neuropathy not directly tied to accident damage or stroke. Beyond these, there's far too many assumptions going on.
🤠Larry 🐏B "🤓Lou⚾" 👣✝️❤️
Gia, Have you considered a stimulator trial for Neuropathy? They do the trial to see if it works. My condition required a specific dorsal root stimulator that goes into the sacral area, but since my sacral plate being restructured I had to get the spinal one up further. Mine was a failed experiment, but others have had success and others failures. I hope you start to feel better.
@A MyChronicPainTeam Member sending you hugs and prayers for a better 2024
Hugs from your friend Judy in Australia
Thank you for sharing.... I'm currently under pain management... Just pills.... I just would like a solution for my neuropathy on top of my cprs.... I hope the neurologist has something for me....