Does anyone feel like all you do is get in the way and slow everyone else down? As though everyone wants to get somewhere yesterday and you can't do so until tomorrow and so they are all ready and waiting at the door and you sometimes just end up passing on the trip, or activity, because you are still trying to get on your shoes and coat, so to speak.
Did anyone else have to sign a contract with their Dr.? I had to sign a promise that I would not accept any controlled substance from any other Dr. Or his service will be terminated.
When I was taken to the ER with a fractured clavicle I had no idea what they were giving me in the IV. I FOUND OUT LATER.
I found out from my family Dr. That CBD drops will affect your urine test and will show up. BE FOREWARNED.
I happened upon a survey/Questioner from the national pain report. They are fighting back amongst the effects the opioid crisis is having, tying our doctors hands in properly treating us with the medications we need. They collected 1700 questioners along with each patients stories. A few weeks ago their findings and recommendations were brought before the F D A. We are fighting back!!!!! The findings and recommendations can be found in part one and part two of the report. They do have a… read more
Regardless of how cool/cold it is around me I will sweat a ridiculously large amount and my ears get red and actually feel hot. It's like my internal thermostat is out of wack, I can just be sitting for this to start so I was wondering if any one else has dealt with this and if so how do you deal with it
I have been having a rough weekend with my pain and my depression/anxiety and more so, far of what is to come, after recently finding out I’m being forced off of my pain medication. My health insurance is stating that they are tapering me down due to the obvious opioid crisis going on in the world which I completely understand, but to leave me with so many questions, no choice in this decision, no non-opioid medications or alternative treatment options being considered or offered, no plan if… read more
My doctor quoted some CDC report that was intended as a guideline for general practitioners that said no chronic pain patient should be prescribed more then 90mmg of morphine equalivent for chronic pain patients irregardless of pain levels or time on opioids. The DEA jumped all over this reccomdation and is using it to force pain doctors to drasticly cut medications, leaving millions of us in dire pain without help or hope.
More of an WISH.... I wish this site had a "Chat" component". Sometimes I stay on here for awhile, and like to look for responses to mine or others posts, etc. BUT.... I would love to able to talk to people in REAL TIME, and not have to wait to see responses, etc. Since my entire social life is now online, as I am sure is true for many of us, I would find a chat extremely beneficial and therapuetic. I belong to an artists chatroom, but that is public, and people come in all the time who we have… read more
Does anyone else feel that they are getting worse pain increasing feeling a bit anxious & paranoid.
The control you usually have to manage what is wrong is just slipping away. Doctor does not seem to understand "Well it's a degenerative condition" & you worry that the day will come when you are out of options
I think winter is probably worse for this. Folk say you will be fine!! NO you know what I wont be "fine" I will never be fine again. What do others do when they hit rock bottom?
Recently started seeing a Pain Psychologist!! After decades of PAIN, Stanford University offered me a Pain Psychologist. I thought how ridiculous but travel the 600 miles round trip for my 45 minute appointment which has changed my world of Pain. It doesn’t take away the pain. It doesn’t minimize the pain. But it does help me Deal with the pain in ways I never imagined. Did you know that 20 minutes of diaphoretic breathing ( belly breathing) a day for 5 weeks retrains you’re brain to deal… read more
I am collecting information in an attempt to contact those that are making our laws about opioid addiction. I have already contacted some law makers. When the new proposals are announce, I want to be very ready to get active in trying to be sure that those of us in chronic pain are not ignored in the process. Please be very specific if you feel that you have already been affected by new state laws or the national CDC Guidelines for pain managers and their use of opioid. Thanking you all in… read more
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