Does anyone feel like all you do is get in the way and slow everyone else down? As though everyone wants to get somewhere yesterday and you can't do so until tomorrow and so they are all ready and waiting at the door and you sometimes just end up passing on the trip, or activity, because you are still trying to get on your shoes and coat, so to speak.
Yes. I'm always either in the way or completely invisible 😢
Did anyone else have to sign a contract with their Dr.? I had to sign a promise that I would not accept any controlled substance from any other Dr. Or his service will be terminated.
When I was taken to the ER with a fractured clavicle I had no idea what they were giving me in the IV. I FOUND OUT LATER.
I found out from my family Dr. That CBD drops will affect your urine test and will show up. BE FOREWARNED.
Contracts are malarkey. We are treated worse than injured animals and pets.
I happened upon a survey/Questioner from the national pain report. They are fighting back amongst the effects the opioid crisis is having, tying our doctors hands in properly treating us with the medications we need. They collected 1700 questioners along with each patients stories. A few weeks ago their findings and recommendations were brought before the F D A. We are fighting back!!!!! The findings and recommendations can be found in part one and part two of the report. They do have a… read more
I'd like to know this as well
I have been having a rough weekend with my pain and my depression/anxiety and more so, far of what is to come, after recently finding out I’m being forced off of my pain medication. My health insurance is stating that they are tapering me down due to the obvious opioid crisis going on in the world which I completely understand, but to leave me with so many questions, no choice in this decision, no non-opioid medications or alternative treatment options being considered or offered, no plan if… read more
To be honest and frank. No I dont feel that. What Ive experienced is a support system offering alternatives to drugs which in my case had some horrible side effects and didn’t really work. So no… read more
My doctor quoted some CDC report that was intended as a guideline for general practitioners that said no chronic pain patient should be prescribed more then 90mmg of morphine equalivent for chronic pain patients irregardless of pain levels or time on opioids. The DEA jumped all over this reccomdation and is using it to force pain doctors to drasticly cut medications, leaving millions of us in dire pain without help or hope.
Medicare is also limited pain procedure. Can't have but 2 epidural and RFAs per year
Those used to keep me somewhat active. Of course nerves grow back. But used to get at least 10 a year...I'm having… read more
Regardless of how cool/cold it is around me I will sweat a ridiculously large amount and my ears get red and actually feel hot. It's like my internal thermostat is out of wack, I can just be sitting for this to start so I was wondering if any one else has dealt with this and if so how do you deal with it
so hemp seed helps?
More of an WISH.... I wish this site had a "Chat" component". Sometimes I stay on here for awhile, and like to look for responses to mine or others posts, etc. BUT.... I would love to able to talk to people in REAL TIME, and not have to wait to see responses, etc. Since my entire social life is now online, as I am sure is true for many of us, I would find a chat extremely beneficial and therapuetic. I belong to an artists chatroom, but that is public, and people come in all the time who we have… read more
Im also up all night i believe caused by my pain meds so yes it would be nice to be able to talk to someone or in my case as i live with my mother, we could txt so not wake up other members of the… read more
Chronic pain patients are being forgotten about and punished with all these new laws and pressure from the government and states regarding opioid use
Chronic pain patients need help to get the medication they need. Drug addicts now use meth, heroin, etc. They no longer use opioids because they are so hard to get. Help is needed. I am so tired of being treated like an addict. I want my life back, I need help. Opioids is all that helps. Why should I and so many others like me continue to… read more
It doesn’t take anything from them, it’s all these kids getting disability that’s keeping us who paid into it in poverty! They changed in 72 from Disability for American Workers to Disability for… read more
Does anyone else feel that they are getting worse pain increasing feeling a bit anxious & paranoid.
The control you usually have to manage what is wrong is just slipping away. Doctor does not seem to understand "Well it's a degenerative condition" & you worry that the day will come when you are out of options
I think winter is probably worse for this. Folk say you will be fine!! NO you know what I wont be "fine" I will never be fine again. What do others do when they hit rock bottom?
The one good thing about hitting rock bottom is that there is only 1 direction to go, and no, I'm not talking about left or right but up up up. If you feel your doctor isn't giving you what you need… read more
I am collecting information in an attempt to contact those that are making our laws about opioid addiction. I have already contacted some law makers. When the new proposals are announce, I want to be very ready to get active in trying to be sure that those of us in chronic pain are not ignored in the process. Please be very specific if you feel that you have already been affected by new state laws or the national CDC Guidelines for pain managers and their use of opioid. Thanking you all in… read more
I hope this doesn’t offend anyone, but it reminds me of Hitler’s strategy. First get rid of disabled people. They know they can’t just put us in camps or line us up and just shoot us. They are doing… read more