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@A MyChronicPainTeam Member. That's very good advice. I've had CRPS since 2007 and back then most doctors had no idea what it was or how to treat it. People today need to educate themselves so… read more
just wondering how you get over feeling like you need to apologize or "power through" fatigue. 🤔
This is interesting... I read where pain patients begin their story "I was in an auto accident (it wasn't my fault"). It seems we apologize for breathing! :) I think we feel bad for not being… read more
Okay, pull up a chair! lol
TBI, Traumatic Brain Injury
RSD, Dystonia, Neuropathy, Epstein Barr Virus, CMV Virus and Lupus. (www.hhv6-foundation.org is the research on viruses). I've overcome… read more
Chronic Pain is stressful. Stress affects our health and and immune system. Make sure your blood work is up to date with all the necessary panels. Take care of your health even though it seems… read more
I live with chronic anxiety. It causes me abdominal pain and nausea. People tell me to relax and not worry. Does anyone understand that if I could stop the anxiety , I certainly wood. I employ coping… read more
I have unrelenting arthritis in my neck and shoulders, pain is almost unbearable from 3am to 10am. I take 75mg of Diclofenac sodium delayed release tablets twice a day but still have unbearable pain mostly in the mornings. The pain lessens as the day goes by but never completely subsides. It’s very hard to live like this, the pain fatigues me so. I’m 73 and a polio survivor.
I know about PPS and it’s progressing effects, mostly fatigue and weakness. I’ve seen an orthopedic doctor in the past, they took X-rays. They told me I have bone spurs on the vertebrae of my neck… read more
I have a lot of different pain going at the same time and so not all pain tablets work for all different types of pain in your body. I have transplant kidney so I get pain there from stones and kidney and bladder infections and then bowel pain and adhesions and back pain and groin and legs so you can see I get a lot of different pain happening all at once
I was born with a lot of different problems so I’ve been going through chronic pain since for a very long time. I use to be able to handle… read more
No, I do not believe there will ever be a "cure-all" pain relief . I think that the sooner you try and then accept the inevitable - that it is better to distract your mind with interests/conversations… read more
I noticed my seizures changed... I was aware but couldn't move because it was so painful during the seizure. I researched and discovered there are seizures that go up and down the spinal cord and can… read more
The Magic Butter Maker is a machine that you put the pot and either butter or alcohol, push the button and a few hours later you have Canna-Butter or Tincture. The butter should be clarified so I just… read more
I have so many problems and the general medicine people I've met aren't the best. No bedside manner, lack of follow up, seems they don't read your charts. I'm sure you've all experienced having to be your own advocate so much of the time🙁.
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