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Has Anyone Heard About The New Guidelines Set By The CDC For Prescribing Limit Withopioid Treatment For Chronic Pain?
A MyChronicPainTeam Member asked a question 💭

The CDC has put out a guideline that suggests no one individual should receive more than SIXTY mg. daily. weather it be OxyContin ER or oxycodone or a combination of the two.
Has anyone been affected by this yet?

posted July 15, 2016
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A MyChronicPainTeam Member

First of all, what the CDC put out are RECOMMENDATIONS not guidelines. And the amount they say that people should take is 100 mg a day. I personally am prescribed 240 mg a day through Duke Pain Medicine. I am monitored strictly. Without these pain meds I would not have anything resembling a life. My doctor understands and agrees with me on this. I have been on oxycodone for several years and it is the only thing that ever gave me any real relief from my daily pain. I fortunately have never had any ill side effects from this medication, like constipation. It does not make me sleepy nor give me energy (wouldn't that be nice if it did!). It just gets to the pain. I am thankful and blessed to have found a doctor who will treat me with what I need to have a life. Now years ago I had a previous doctor who put me on Oxycontin. What a horrible drug that is!!!!! I felt terrible taking it and as he would not work with me to wean me off it, I took myself to Rex Pain Clinic and asked them to get me safely off of it. I fired that doctor and that is when I found the new one that is so wonderful. I believe Oxycodone is a good medication when used correctly and for it's intended purpose. It's all these people out there abusing it that are giving people like me a bad rep.

posted August 2, 2016
A MyChronicPainTeam Member

HI Bonnie
I have already had to go through a change that started in 2012 and lasted one year to reduce to my current prescription.
That change affected my families life to the degree that I had to sell the house because we cannot maintain it properly and being on a fixed income I must be very frugal.
Our quality of life has been diminished horribly. We may have been out to dinner 3 or 4 times in the past 4 years.
The " TO DO " list just continues to grow and grow, I can't keep up.

Before the first change I was prescribed 11 Thirty mg. Roxicodone daily and 2 Eighty mg. OxyContin daily.
That was reduced to 4 Thirty mg. Roxicodone daily and 6 Eighty mg. of OxyContin.

Now I'm being told by Doctors as well as reading the report myself that the maximum dosage recommendation for one or the other or a combination of both is 60 mg.

I'm going to end up in an assisted living home.

I'm trying to reach out to as many people as possible that suffer from chronic pain to contact the CDC and take a stand. we are not the people overdosing and or selling pur medications and we need to control our pain to have somewhat of a normal life.

It is bad enough being disabled dealing with pain that has a mind of its own. Now I won't even be able to have any happiness

I am afraid. If there was something else thata controlled the pain I would be happy to do it. However I have yet to find it over the past 15 years.

posted July 16, 2016
A MyChronicPainTeam Member

I was on the lowest dose of Percocet and I was doing great. But because of the “Opioid Crisis” I was put through withdrawal and ended up in the hospital. My life since then is just filled with pain 24/7. I’ve also been on Duloxetin - 60mg so I’m a happy person in a hell of a lot of pain. I’m finally having a neuro transmitter trial in two weeks. I’ve never even heard of or had the meds suggested to me that Tammy mentioned but I’m going to ask the pain specialist. The medical community here has abandoned those of us with chronic pain. We are branded as addicts and doctor shoppers and the only reason we go to the Er is to try and get drugs there. This has become an unbelievable situation! I’m very angry!

posted October 23, 2019
A MyChronicPainTeam Member

I'm so sorry, Debi :( Some antidepressants are used for "nerve pain" or for symptoms of fibromyalgia. But I have not heard of any Dr prescribing Prozac for these issues. Some medications like Cymbalta, Lyrica, Neurontin (gabapentin), Celexa etc are used.
Someone mentioned suboxone and that is a med used for withdrawals from narcotics. There is a pain patch called Butrans which has some elements of suboxone in it. Methadone is another medication that has been prescribed for pain even though it's given to heroin addicts.

Inspire is an organization that has a petition started for the pain meds.

posted August 1, 2016
A MyChronicPainTeam Member

My regular pain dr saw me for 5 years, and then started doing stem cell therapy and no longer seeing pain clinic patients. Must be more $$ in it for him. Was seeing 2 other pain doctors at the same clinic after. One just want to take everything away, the other also suffers from chronic pain so she understands more of what life with pain is like.

She was on vacation last month and had to see doctor withdrawal, he tried taking my Fentanyl away saying I am on a higher dose than any other patients at the clinic and that he did not want to prescribe it to me. That was a long very heated discussion to keep my meds with saying that I would seek legal recourse against him. After being on Fentanyl and oxys and a few other meds for 7 years due to life threatening car accident, it would put me in to horrible withdrawal. He finally gave in but changed the dose so it has been a hard month. I filed formal complaint against him/he also put in my charts Im an addict, not my choice. I would rather still be working instead of being totally disabled, social security is a joke I made more a week than I get in a month.

I also told the pain clinic that I refuse to ever see that dr again. I wanted to change clinice but that is harder than you can imagine, no one will prescribe my meds at the doses or the same kinds.

My life was taken away by an accident, Im labeled as an addict. I do not drinl, I did not do drugs I had a good life. Would anyone chose to not be a part of life any more? I just want my life back, the chronic pain to go away to never have another surgery again.

Chronic pain has stolen my life away, not my choice. Not any way to live. The guy that T boned my car should be the one to suffer not me.
Sorry rant over

posted October 15, 2020

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