OK. But its the waiting. ....endlessly....why is it that there is so Many of us are in pain and yet nobody will say or do anything. There is no cure or no way out of this misery.... Just, 'manage' the pain!!!!!!

Yep! We can all live in hope!xx

Wendy , you sound like me last night. So frustrating when pain cant be controlled and dr.s at a loss. I have a diagnosis but the conventional treatment doesnt seem to be working for me. It is easy to feel totally adrift with no support from medical system. Im going to start looking outside the box. Problem with that though is alternate therapies are usually really expensive. Hopefully some relief for all of us in the future. Xoxo

I'm just sick of it all....lying on my bed , haven't got the will or energy to do anything!!

I have had abdominal swelling, when wa your last bowel motion as its possible you may have a bowel obstuction. Though they are usually quite painfull with pain that comes and goes like your in labor or you may just be constipated. I'd see the doctor if you haven't been moving your bowels of late.