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Real members of MyChronicPainTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 23, 2016
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Answer Summary

Members deeply connected over the shared grief and frustration of watching others do things they can no longer do, with many describing... Read more

Members deeply connected over the shared grief and frustration of watching others do things they can no longer do, with many describing feelings ranging from envy and sadness to occasional anger, particularly when losing independence or facing judgment from strangers about mobility aids or parking permits. Several members shared that while acceptance becomes somewhat easier with age and experience, the journey involves a grieving process similar to mourning a death, with many finding it helpful to focus on what they can still do rather than what they've lost, use creative workarounds like compression sleeves for hand pain, and remind themselves that their struggles are valid even when invisible to others. A recurring theme was the profound isolation of living with limitations that healthy people cannot understand, the importance of community support in feeling less alone, and the ongoing emotional work of moving through anger toward acceptance while still honoring the very real losses that chronic illness brings.

A MyChronicPainTeam Member

I have been struggling with this for the last several years. Coming to terms with the fact that physically I will never be the woman I was. Unless someone is going through a similar experience they just do not get it . The answer is acceptance I know this. I go back-and-forth with accepting my limitations. I get angry I get depressed I feel sorry for myself. Then I also try and look around it others who are worse off than I am and I try to be grateful for what I can do. It is a process that I have not yet completely worked my way through. I would compare it to a grieving process almost like a death. That is the best way I can explain it for me. Which is how I ended up in this group. It helps to know I am not alone. And you are not alone.

September 24, 2016
A MyChronicPainTeam Member

@A MyChronicPainTeam Member I went through the bit where people would stare at me or make rude comments when I was younger. I finally got tired of the comments, I have a smart mouth, and would look at those commenting and tell them, "go ahead and call the cops because I will be in that store and can be paged". Not one of them ever followed through. Hold your head up, you earned that parking plate.

August 25, 2016
A MyChronicPainTeam Member

From looking at your picture, I surmise that you are a young lady. I am probably quite a bit older than you, so my experience will be different. I often visit others who have a nice, clean house and this is when I feel sad that I can no longer do many things. I used to love to walk, but like you, I can't walk far or long because of my back pain. I can accept it simply because I have lived longer and don't have the regrets because I did a lot of things when I was young. I know that it is no comfort to you now, but acceptance does really come with age and experience. I am sorry that you are experiencing this difficulty, and I will add you to my daily prayer list. I also find that just looking at others and some of the difficulty they are having makes me thankful that I can still do the things that I can still do. I have to say that I have never experienced the staring by people that others have. Maybe my white hair makes me exempt. Unfortunately, people judge when they have no right to so so. I have come to realize that it doesn't matter what others think or say, I know what is true and they don't. I doubt that my rambling has helped you much, but I do empathize with you. While I don't know your particular pain, I do know that there is One greater than any pain and I have a personal relationship with Him. I pray the same for you.

August 25, 2016
A MyChronicPainTeam Member

Sadly my independence is slipping away too. I use a handicap car sign and when I get out people just stare at me like I shouldn't be using it but, I can't walk very far or long due to the ridcolopothy. Its embarrassing!

August 24, 2016
A MyChronicPainTeam Member

I get mad at myself because I remember doing things and not thinking twice about it. And I often wonder if people without my issues know how lucky they are. The thing that I get angry about is when a stranger offers to help me. Not at the person but because I'm not hiding my issues like I think I am. But I always try to stay positive...but it's harder than hell sometimes. And I often wonder if this is gonna be it for the rest of my life.

August 23, 2016

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