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Real members of MyChronicPainTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyChronicPainTeam Member asked a question 💭
Portsmouth, VA

This is Multiple Autoimmune Syndrome. Having three or more autoimmune diseases.

November 28, 2016
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Answer Summary

Members openly shared their experiences living with Multiple Autoimmune Syndrome, revealing how three or more autoimmune diseases often create... Read more

Members openly shared their experiences living with Multiple Autoimmune Syndrome, revealing how three or more autoimmune diseases often create a complex web of overlapping symptoms and challenges that many doctors struggle to treat holistically. Several members described their specific combinations, including Sjögren's with Hashimoto's thyroiditis, hepatitis C complications leading to cryoglobulinemia and vasculitis, relapsing-remitting MS with Lichen Planus, and various conditions like fibromyalgia, arthritis, neuropathy, and chronic pain that compound the daily difficulty of managing multiple diagnoses. A recurring theme was the emotional resilience members have developed, finding humor and perspective in their situations while advocating strongly for medical providers to treat the whole person rather than isolated conditions.

A MyChronicPainTeam Member

Yes I do. I have relapsing remitting MS. I've just been diagnosed with Lichen Planus which is an autoimmune disorder of the mouth. My gums swell and it feels like a mouth of canker sores. I'm not able to tolerate oral pills of steroids so I'm trying a steroid gel. So far it hasn't helped a lot. Add my chronic back pain and stress and let's not forget feelings of isolation and loneliness. Life is just not fun these days.

December 4, 2016
A MyChronicPainTeam Member

@A MyChronicPainTeam Member I have the three that I have mentioned before plus two dermatologica ones. One of the skin ones has this delightfully gross name that I love, nurses cringe when it breaks out. The name, spelling as always, is Plamp Plantar Pustulosis. I have pustulosis. Hysterical. It is basically harmless and not contagious but starts with brown spots which turn into pustules, drain and can become sore. I use lidocaine ointment on it. It may be related to the three ortho ones I have. Whatever, I get to have fun with it, especially when it is full blown with my hand covered in spots and a nurse or tech freaks out. You get to have fun with some of this.

November 28, 2016
A MyChronicPainTeam Member

How funny !

December 7, 2016
A MyChronicPainTeam Member

Have bed days and barely movable dayds the cold hurts more

December 7, 2016
A MyChronicPainTeam Member

Yes

December 7, 2016

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