Thankyou Tommy for sharing it is so overwhelming and the times I have a GOOD hrs I think maybe this time it is gone....but no. I am in Australia so not sure how different treatments are . 😞

Hello, my CRPS started in my rt neck, shoulder, and complete rt arm. That was in June of 2000, and has spread body wide over the years. I have been told by all the specialists over the years that only 2% of people with this disease will have the spreading effect. It is rare, and I guess that puts me in a spot that most people cannot fathom. I have been on prialt for almost 8 yrs now, works well for me, but not many pain docs use it yet. I asked about the ketamine, but in Arkansas, we are 20 yrs behind the west coast.

Let's keep each other posted, maybe there will be some miraculous cure soon and one of us will get lucky. I don't wish this disease on anyone, not even the evilest of people (well maybe)!
Btw, look up Calamare treatment and Ketamine treatments on Youtube so you can have options for the future. Research reasearch and more reasearch, no one cares about you more than you, don't forget that.

I'm going on 2 years soon and my CRPS is now on my right side, from my foot, to now my hand. I have lost all muscle mass and the atrophy is severe in my foot causing my toes and foot to turn inward, it's painful and looks deformed. It seems that the CRPS doesn't spread on everybody with this debilitating disease, but sadly, you and I are in that category, so I wish you lots of luck too but if you've considered ketamine infusion, look up Dr Kirkpatrick in Tampa for RSD/CRPS. He is my last hope if the spinal stimulator doesn't help. Good luck and hope your pain is better than yesterday.

Honey I know how lost you feel. Hang in there. We have been handed a "life changer" not a life ender.... it is so good to be able to communicate with other people in our situations to pull each other through xx