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Real members of MyChronicPainTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyChronicPainTeam Member asked a question 💭
Australia wa

Hi been in bed two days worse flare up I've ever had couldn't move my legs the bones felt like they were breaking. High temperature pain in kidneys .last two weeks I've had worse bone pain in my legs have done nothing different I'm getting movement back a bit now can move toes but all very tight and stiff take ms conton and lyrica but nothing has been helping. Wondered if any one else has had this problem daughter wanted to take me to hospital but I've been holding of seeing if it will… read more

January 1, 2017
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Answer Summary

Members rallied around someone experiencing an intense flare-up of RSD that left them bedridden for two days with excruciating bone pain and... Read more

Members rallied around someone experiencing an intense flare-up of RSD that left them bedridden for two days with excruciating bone pain and an inability to move their legs, urging them to seek medical help immediately despite past negative emergency room experiences. Several members shared encouragement after the person saw their GP and pain specialist, who started them on ketamine, though many related to the challenge of finding medications that relieve pain without unbearable side effects like nausea or insomnia. A recurring theme was the importance of refusing to accept medications that worsen quality of life, advocating persistently for better solutions, and using humor and laughter as powerful tools to maintain hope and prevent pain from winning.

A MyChronicPainTeam Member

Sorry two days with limits on movement of your legs is enough if they won't help you with the pain than tell them to find the problem and in their Infinite wisdom Get something done. get something done good luck and try to get some answers.

January 2, 2017
A MyChronicPainTeam Member

Janet,

I learned the secret of winning in situations that people like us have. Always remember jokes and silly quips because as long as you can smile and laugh, you really have won that battle. If you do that then pun by pun, joke by joke no matter how much hell you are in the pain never truly wins.

I hope that I am not alone thinking this, but it's how I cling to hope.

Be safe and pain free
Mark

January 10, 2017
A MyChronicPainTeam Member

Thank you seen gp and pain specialist trying new medication but it's keeping me awake now helping bit with pain oh you just can't win have a good day.

January 9, 2017
A MyChronicPainTeam Member

Seeing pain specialist today hope for answers

January 3, 2017
A MyChronicPainTeam Member

My medication was changed 5x within a couple months, seeing the doctor every other week for awhile. I'm really sensitive to medications, so if one doesn't agree with you, they will have to find one that does. I refuse to take any medication that makes me sick or depressed. After chemo, they gave me 2 meds to stop the nausea, so that might be an option too.
The point of taking any medication is to have a better quality of life. Feeling nauseous, dizzy, etc. is not having a better life.
Keep trying and watch a good comedy to release endorphins.

January 31, 2017

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