I have seen many doctors in the past couple of years trying to find the source of my pain. I had neck fusion surgery in September 2014. Instead of getting better, things kept going downhill. I started getting daily migraines and pain that grew from my neck and shoulders to my arms, legs and now my trunk and hips. I have fibromyalgia and diffuse myofascial syndrome according to this last doctor. But I feel that there is… read more
Thanks @A MyChronicPainTeam Member . I started seeing a pain specialist for my multiple problems but I just don't get to really voice my issues. It's hard to get the Doctors to listen and if they would, I think they could actually get somewhere.
My pain management doctor didn't take me off all meds but he seems disinterested in what I have to say. Like I am just a bother to him. I hate that.
I feel for everyone who deals with chronic pain I thought I'd take a leap of faith and see a pain management team because of my past over 10 years ago beeing a drug user even though I was diagnosed with a chronic illness ehlers danlos syndrome that's still didn't matter to him and he basically said there's no hope go on the methadone program another thing that I had don't like about having a chronic illness is people thinking that I can't be a good mother to my children I do anything for my children even when I have severe flare ups I'm always there for them 100% people need to get their head around that you can have a chronic illness and be the best mother possible
Have heard that before if they are pain management doctors that is what they should be helping us to do. I have been put off seeing one as I have heard of some that take you off all the meds, I can't see the point in that.
Please read it all, there are too many avenues for "short and sweet". I don't mean to sound confrontational with anyone but treating an undiagnosed pain without diagnostic testing is not competent medical practice. The other issue COULD be you have a physical issue that needs treatment, something else than another "popular" pain killer. I have had an existing chronic illness for years & recently was diagnosed with another disease on top which took " forever" to identify but without ALL of my existing issues, meds., prior treatments etc. I would of been in a much worse place.
*I am telling you this as a long term patient and nurse. If it was me I would organize all my history, meds. & current issues and go to a specialist in your field: sounds like orthopaedic or neurologist maybe, don't give up until you have one that LISTENS. When you ask "what diagnostic test could help you" if they come up with nothing ask why and if you are not satisfied go to another. I know it can be costly and frustrating but first surgery should NOT be their first answer and second a diagnostic test will hurt nobody and confirm or clear you of any suspected problems. Second and even third opinions are NEVER a bad thing. Let us know how it goes.Good luck and be your own best advocate, be firm- it's your body.