I am collecting information in an attempt to contact those that are making our laws about opioid addiction. I have already contacted some law makers. When the new proposals are announce, I want to be very ready to get active in trying to be sure that those of us in chronic pain are not ignored in the process. Please be very specific if you feel that you have already been affected by new state… read more
I am effected & my problems aren't all addressed yet but because of the new laws I've had to cut back & in the process of getting off the Fentanyl patches . I understand why ; I just hoped the Dr's would wait til after my gallbladder test & if it's not working then do the surgery ; then start weaning off the meds ! Its not my fault it's taken so long for everything ; I ve been doing everything they asked . I was in a big group of Dr's but my Dr transferred so I was left without a primary dr ; & the ones I went to in the group just refused to fill anything at all regardless of withdrawals or that I've had heart attacks ! I now have a primary near my home & she's trying to help but I have over 30 yrs of injuries ; diagnosis etc .
And she must comply with the laws ...... so I'm complying & suffering more daily ! But that's my problem as long as I comply & cut back !
If it didn't hurt so bad every time I have to go #2 ; which is several times a day .... but I m doing what the Dr's say is better for me !
I have no control over my life .... I go nowhere ; I do nothing but suffer in bed .... what a wonderful life !!
@A MyChronicPainTeam Member
After all these years in terrible pain, I never imagine that anything would ever change. My pain manager tells me I'm not through with pain but I'm down 50% on opioids and still having less pain than any time in the past 21 years. I won't say that I can do anything that I want, but if I'm very careful, I can have a reasonably comfortable day. I'm counting my blessings and praying a lot. Hugs, Jean
I previously posted how I was taken off my pain medication because of the new CDC practice guidelines. I strictly followed all the rules and regulations including drug testing and never was there and issue with me. I was only on Hydrocodone 5 mg 1-4 times a day. This is a small dose but it worked for my severe pain. I was more productive and social on the pain med and would not have been able to continue working the last 10 years without them. I have fibromyalgia and arthritis in my neck and spine due to an a car accident where my head went through the windshield, it was caused by a drunk doctor. I asked my provider what am I suppose to do without the pain medication, he replied "I don't have any answers for you". I have had 2 gastrointestinal bleeds due to anti-inflammatories and an anaphylactic reaction. My only option is Tylenol and that has never worked for me. I believe this big push to take people off of their pain medication is inhumane and immoral. They sure wouldn't do this to dogs.
@A MyChronicPainTeam Member
I'm so happy for you that your insurance company has approved your new treatment. As for needles, I can really relate to your apprehension. I did give myself allergy shots for years and it was no big deal. One of my grandsons was diagnosed with diabetes at age 12 and the second day he was doing his own injections. I suspect you will go through a rather quick adjustment period especially if the treatment makes you feel better. It's a little intimidating the first time you have to stick a needle into yourself, but not a real big deal. I'll pray that it goes smoothly for you and that you adjust quickly.
I have taken all of the comments that I collected on this site plus other information and have been sending it to select people. I'm not getting much support because so many parents who have lost children to overdoses are writing those same people to do something about these "dangerous" drugs. Every time I send something out, I begin by saying "I don't want to minimize the need to do something about those people overdosing on illegal narcotics, but..." It's very hard to compete with people that have just lost their children to this epidemic. I think we can address both issues, but I'm not finding that kind of agreement. I'm not giving up. It just takes finding the right people.
All the years that we lived in Vermont, we had a nice vegetable garden. I even used the garden as a way to explain the facts of life to the kids. LOL It's so nice to be able to get out in the sunshine. It does great things for our moral.
I have been feeling really well. For over 4 months now, I'm mostly pain free. My pain pump has been reduced by 70%. I hope that I'm not being too optimistic, but I'm feeling very positive about no longer needing narcotics. I would like to be able to take care of any pain that might still be around, after the pump, with none narcotic methods. I've been on narcotics for 17 years. 17 years ago the doctor told me the narcotics would shorten my life expectancy. I'm now 69 and doing much better than I was when I started narcotics. If I hadn't started them I'd probably still be lying on the couch and I'm sure that that would have shortened my life.
@A MyChronicPainTeam Member your doctor sounds very coldhearted.....i do have to go to my pain doctor monthly and do random drug urine tests which i don't mind at all, I'm not doing anything wrong. I also like my pain doctor and the PA and actually everyone in the office. I'm especially fond of the PA. She actually takes the time to chat with me sometimes about life in general and is very compassionate. I do feel very fortunate to have finally found this wonderful place. Unfortunately the wait is getting longer each time i go.....my wait the last time was 1 1/2 hours till i saw anyone, but thankfully I sat in waiting room half hour , then they took me back to a room and the rest of the wait i got to lay down.
Is there another doctor you could try? I forget where you're from...