I am collecting information in an attempt to contact those that are making our laws about opioid addiction. I have already contacted some law makers. When the new proposals are announce, I want to be very ready to get active in trying to be sure that those of us in chronic pain are not ignored in the process. Please be very specific if you feel that you have already been affected by new state laws or the national CDC Guidelines for pain managers and their use of opioid. Thanking you all in… read more
I am effected & my problems aren't all addressed yet but because of the new laws I've had to cut back & in the process of getting off the Fentanyl patches . I understand why ; I just hoped the Dr's would wait til after my gallbladder test & if it's not working then do the surgery ; then start weaning off the meds ! Its not my fault it's taken so long for everything ; I ve been doing everything they asked . I was in a big group of Dr's but my Dr transferred so I was left without a primary dr ; & the ones I went to in the group just refused to fill anything at all regardless of withdrawals or that I've had heart attacks ! I now have a primary near my home & she's trying to help but I have over 30 yrs of injuries ; diagnosis etc .
And she must comply with the laws ...... so I'm complying & suffering more daily ! But that's my problem as long as I comply & cut back !
If it didn't hurt so bad every time I have to go #2 ; which is several times a day .... but I m doing what the Dr's say is better for me !
I have no control over my life .... I go nowhere ; I do nothing but suffer in bed .... what a wonderful life !!
I'm told I have to get off the Fentanyl patches & they ve cut back dilaudids & norcos !! And I'm suffering more every day ! I'm afraid it's more important to them that I get off everything regardless of my suffering !! The G I pain has caused 3 heart attacks ; each one while in the hsptl & cuz I was in excruciating pain ! I'm afraid it will happen again since the problem hasn't been taken care of yet !!
Its not my fault the Dr's can't diagnose me for so many years even though I kept going to specialists over & over again for over 30 yrs ! I put up with the pain for so long before I started taking pain meds ; now I'm supposed to just get off them cuz they think everyone should ??
I don't understand .... I thought Drs were supposed to help us feel better & get better !! All I ve been trying to do is Live Some Kind of Functioning Life !!
Now I'm in bed every day ; all day & night !
I can't go shopping ; I can't go visit fri ends ; I can't even clean my home or cook meals without ending up in more pain . And I have to cook for myself ; with Celiac disease I can't trust eating out ; every time I tried & made sure it was gluten-free ; even made sure the restaurant knew but I ended up in the hsptl & ICU !!
I pray alot ! But I am actually scared .... I think the Dr's care more about getting us all off all pain meds now regardless of what we are going through !!
May God Help Us All !!
Not everyones just addicted to pain meds ..... some of us actually can't live or function without some ; whether we choose to or not !!
I certainly don't choose to live on pain meds or anything if we can !!
Pain takes over my life .... every damn day !
@A MyChronicPainTeam Member
After all these years in terrible pain, I never imagine that anything would ever change. My pain manager tells me I'm not through with pain but I'm down 50% on opioids and still having less pain than any time in the past 21 years. I won't say that I can do anything that I want, but if I'm very careful, I can have a reasonably comfortable day. I'm counting my blessings and praying a lot. Hugs, Jean
I previously posted how I was taken off my pain medication because of the new CDC practice guidelines. I strictly followed all the rules and regulations including drug testing and never was there and issue with me. I was only on Hydrocodone 5 mg 1-4 times a day. This is a small dose but it worked for my severe pain. I was more productive and social on the pain med and would not have been able to continue working the last 10 years without them. I have fibromyalgia and arthritis in my neck and spine due to an a car accident where my head went through the windshield, it was caused by a drunk doctor. I asked my provider what am I suppose to do without the pain medication, he replied "I don't have any answers for you". I have had 2 gastrointestinal bleeds due to anti-inflammatories and an anaphylactic reaction. My only option is Tylenol and that has never worked for me. I believe this big push to take people off of their pain medication is inhumane and immoral. They sure wouldn't do this to dogs.
I have a bladder disease called Interstitial cystitis. They don't know what causes it and there are no treatments that work and no cure. My bladder burns like hot oil burns. I was on a Fentanyl patch and oral demerol for twenty-two years and my doctor retired. I had to start going to pain management in October and they immediately took me off of the demerol and put me on Nucynta three times a day and now they are decreasing my patches until I am completely off of them. I am in pain all the time now and I have not been able to do anything anymore. I am either in bed or on the couch twenty-four hours a day. I have no quality of life and all my new doctor says is that I'm breathing deeper and my mind should be clearer and that my body will adjust to the pain and eventually I should be able to get off all my pain medicines. I have been contemplating suicide if this is how my life is going to be from now. This is so wrong to torture people with chronic pain.
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