Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyChronicPainTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Not Totally Pain Related ...and more of a Comment

A MyChronicPainTeam Member asked a question 💭
Southern Maine

More of an WISH.... I wish this site had a "Chat" component". Sometimes I stay on here for awhile, and like to look for responses to mine or others posts, etc. BUT.... I would love to able to talk to people in REAL TIME, and not have to wait to see responses, etc. Since my entire social life is now online, as I am sure is true for many of us, I would find a chat extremely beneficial and therapuetic. I belong to an artists chatroom, but that is public, and people come in all the time who we have… read more

June 22, 2017
 · 
Reactions

Answer Summary

Members strongly resonated with the wish for a real-time chat feature on the pain support site, with many sharing that chronic pain has left... Read more

Members strongly resonated with the wish for a real-time chat feature on the pain support site, with many sharing that chronic pain has left them socially isolated, homebound, or awake during lonely nighttime hours when connection would be most meaningful. Several members offered practical workarounds, including setting up mobile notifications for replies, exchanging phone numbers for direct contact, creating private Facebook groups, or trying an existing chat link that unfortunately sees little traffic. A recurring theme was the deep need for immediate human connection with others who truly understand the isolating reality of living with chronic pain, rather than waiting hours or days for responses on a slower forum platform.

A MyChronicPainTeam Member

Hi Linda!!! I SO SO get that... I am still able to drive, but limited. I will not go far, b/c the pain will start. And I have CFS.....before they put me on a med for it, I was falling asleep at the wheel.....it was one of the reasons I had to stop working. Most of us share the burden of the "invisibility". I actually stopped fixing my hair and wearing makeup for awhile so ppl would get the picture!!!! I am adding you to my team!!! (((((gentle hugs)))))

June 24, 2017
A MyChronicPainTeam Member

I agree with the chat component. And agree with life being online more so. Sadly being in such pain and on hard meds i cant do a lot. Even socializing is painful sigh. Would be nice to chat with people who know what I'm going thru.

June 23, 2017
A MyChronicPainTeam Member

i wish we had a chat component too and am wondering how we could contact someone at this site who could help up. of all people, we with chronic pain know the loneliness and certainly pain creating times we are awake and would enjoy each others company as in live chat.

November 20, 2017
A MyChronicPainTeam Member

I agree with you. Mostvof my social life is online. To have a way to chat on here would be great.

July 25, 2017
A MyChronicPainTeam Member

@A MyChronicPainTeam Member I would love to be able to speak with you at some point in time - my phone number is (Phone number can only be seen by the question and answer creators). If I'm not at home, please don't hesitate to leave a message with your name and phone number, and I'll call you right back! So looking forward to talking with you!
Blessings!

July 15, 2017

Related Questions

View All

Has anyone hac a nerve block done for back pain?

A MyChronicPainTeam Member asked a question 💭
High Point, NC
October 26, 2016

Sad

A MyChronicPainTeam Member asked a question 💭
Calgary, AB
July 11, 2017

Your chronic pain does not define you...
Symptoms of Chronic Pain
Types of Chronic Pain