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Real members of MyChronicPainTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 23, 2017
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Answer Summary

Members shared their frustration about how opioid restrictions affect chronic pain patients who genuinely need these medications, with many... Read more

Members shared their frustration about how opioid restrictions affect chronic pain patients who genuinely need these medications, with many describing the stigma, suspicion, and exhaustion of constantly justifying their pain to others. Several members discussed their personal weaning experiences, including one who successfully reduced their medication with a pain specialist's help using suboxone, while others explained that opioids remain their only effective option for managing severe nerve pain despite side effects like nausea. A recurring theme was the deep isolation that chronic pain creates, with many members choosing to stay alone rather than repeatedly explain their suffering, and expressing gratitude for the rare friends or family members who truly listen and understand.

A MyChronicPainTeam Member

I agree. Those who have abused their opioids are mucking it up for those of us whose only pain relief are Oxycodone, etc.

September 23, 2017
A MyChronicPainTeam Member

staying alone is my coping skill. I am sick of telling people I don't feel well and and listen to me complain. I am so glad that I live alone and if I don't want to talk to people I don't but I do have to answer the phone when my brother calls he is the only one that understandts and if is really bad and since he has access to thy cameras in my house and the alarm system he will come check on me. He comes by my house 2-3 times a week to make sure I am ok and to eat all the food in my fridge LOL

September 29, 2017
A MyChronicPainTeam Member

Oh my gosh! People look at me with suspicion when I even mention pain meds. Stigma is for sure. Like always being the one whose in to much pain isn't hard enough. Since developing reflex symptomatic dystrophy in my right hand. Following surgery. Im losing almost complete use of it. Im right handed! Just the movement of typing this is an effort. It's been 2 years. 4 Dr.s have told me it's permanent. Nerve pain goes past my elbow. Constantly have to remind people can't do this can't do that. Find myself just staying alone now most of the time.

September 28, 2017
A MyChronicPainTeam Member

explaining pain to anyone is exhausting, (perfectly said) and no one listens, I don't care who, sister, husband, mothers, NO TNo one babys anyone anymore, its sad, I nursed my husband when I was married, combed his hair, cut his nais, cleaned his ears, He was 230 lbs man who was a coal miner, back then we nurtured people not so any more,

October 4, 2017
A MyChronicPainTeam Member

Opioids unfortunately are the only thing that lowers the intensity of my constant nerve pain. They have always made me feel nauseous. It breaks my heart that when I go off them pain becomes agonizing. I really don't see how this new law is going to do anything but cause patients inconvenience. The drug addicts are just doing other things.

September 24, 2017

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