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Seizures
A MyChronicPainTeam Member asked a question 💭

Ok friends, i have a quick question. Have you ever ran out of your pain meds, and while experiencing withdrawls, ever have seizures?

posted January 6, 2018
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A MyChronicPainTeam Member

yes you can have them from withdrawls i did

posted January 17, 2018
A MyChronicPainTeam Member

I believe it's cruel to suddenly stop the pain medication. My acupuncture practitioner has said to go very slow. I've joined a FB pain advocacy group for California. I'm such a computer nerd, or I would send a link! By definition, according to the group, an addict is someone who had a reduced quality of life. A pain patient, on pain medication is someone with an improved quality of life. Doctors are fearful of the DEA.

posted January 25, 2018
A MyChronicPainTeam Member

@A MyChronicPainTeam Member I'm so sorry to hear that you've had 2 seizures in such a short period of time. They certainly could have been a result of the rapid withdrawal of your medications but there maybe an underlying physiological reason for them as well. I'm glad that you're going to your physician to have it investigated, but make sure you give him full disclosure.

About 5 years ago I began to pass out at the weirdest places, at the oddest of times for no apparent reason. Of course everyone wanted to immediately blame it on the fact that I was on narcotics. After many visits to my primary, a neurologist and a cardiologist I was diagnosed with Neurocardiogenic disorder, which basically means that my brain and heart don't communicate. Fortunately with medication and awareness it's now 98% controlled.

Please don't think for a minute that you're the only person with chronic pain who's run out of medication. I can guarantee that you are NOT!! Most will deny it for fear that it will label them as an addict. Be assured that does not necessarily mean that's what is happening. You need to make sure that in addition to using your narcotics that you're also using additional treatments that are available to you. That may mean other medications for symptom control, injections, TENs units, @ massage, and /or other therapies that help you with symptoms. In my 14 years of opoid use I learned very early on that running out of medication wasn't an option bc I'm extremely sensitive to withdrawal symptoms and can't tolerate it at all! I have become very creative in the ways I build my 'reserve" on a "good" day I try to skip 1 breakthrough, on a "so-so" day I'll use 1/2 of a breakthrough dose. I also only have 1 weeks worth of meds visible at a time, for me it's easier to manage a week at a time and I never borrow from another week, but if I don't use everything from a week I store it in a different bottle that can be borrowed from.

I hope that didn't confuse you. I hope that if it makes some sense it might help you find a system that will work for you. I know it's challenging bc most months are 29 really bad days and 1 so-so day. Please don't beat yourself up for running out, but please be very careful bc I'm very worried about the fact that you've experienced 2 seizures. You need to take every precaution to make sure that doesn't happen again.

Gentle hugs 🤗

posted January 7, 2018 (edited)
A MyChronicPainTeam Member

@A MyChronicPainTeam Member Steve, seizures are a very real and dangerous side effect of rapid detox from both alcohol and drugs. Some people do not live through those seizures. I am a recovering alcoholic and have been sober for over 30 years. While I was going to meetings in the city I lived in it was usual for the rehab centers to bring folks to meetings to get them acclimated. I have seen numerous folks have seizures and have seen a few I knew were going to be DOA at the ER. If your pain meds are running low, you are either using too many or you have one of those saddistic docs who have cut you back. You have to pace yourself no matter how rotten you feel. In this environment we are lucky to be getting any help. After all, we are responsible for causing an entire country to fall apart. I am making a bad joke and you may not like what I said but if you feel angry at me may you live to be angry for a long time. The trick to keeping yourself from having that happen is to pace yourself, skip a pill here and there on a good day and set it aside for when you have had a bad month. If you can not do that when you look like you are running short start your own detox, there is still a risk, by halfing then quarting your meds. It will keep the drug in your system and help with the detox.

What I would like you to know is how very lucky you are if you suffered a withdrawal seizure . They can be extremely deadly. I made a judgement call when I saw this question to guess you asked because you did. If I am wrong, I apologize for the error. You can feel free to rip me apart. I know what happens not just from what I saw but because I was a dental assistant most of the folks I hung with were nurses or docs. So my evidence is both empirical data from observation or things I was taught by proffessional friends. Even if you do rip me apart because I made an error I hope that people will read this and understand. If you have a seizure you need to call an ambulance and you need to be evaluated by a doctor. There are medical comlications from that event. Bright Blessings Barb

posted January 6, 2018
A MyChronicPainTeam Member

@Seizures Withdrawel is a really dangerous condition.If you run short of your meds before your renewal date and have no other way to obtain replacement meds then rather than go through the very dangerous process of withdrawal go to your nearest hospital and explain your problen. They are obligated to help you be it by giving you enough meds to get you safely to your renewal date or by admitting you to emerg and supervise your withdrawal. Do not take NO for an answer.

posted January 26, 2018

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