Yes, it’s my 25 yo daughter with CRPS. She is my only child. There is no way I could see her live with that pain. We cashed some of our retirement to pay for it. I would have bought what she needed off the street or worked 3 jobs for her. She got IV Ketamine at a rate of 320mg/hr for 4 hours each day from Mon-Fri. The dose is specific to each person as they use however much is needed to get your brain into a “disassociate state”. Her dose was quite high. We went to Revitalist in Knoxville, TN. We couldn’t have gotten better treatment. Her pain is down from 8 to a 2 with rare fluctuations on occasion. The process was grueling for all of us and it basically “took her out” for the whole week and it took about 4 days after to feel better. It’s not to be taken lightly. But it beats some spinal cord stimulator as it’s not invasive. I also heard lots of those SCS were being removed. We would do it again in a heartbeat! It was just shy of 4000$. If she finds her pain trending up again in a few months (or longer I hope) she will go in for a ONE DAY booster and she will get back the same benefits for just as long. This treatment should be part of the CRPS protocol but since Ketamine is cheap and generic, there is no money in it. I have lost ALL faith in the health care community not to mention scum sucking lawyers. Her CRPS was caused by a botched nerve block but no one would take our case bc these lawyers are owned by the medical community. Sorry, I digress. I have so much anger to get past. I don’t know if it’s possible. But I do know, my daughters care is in OUR hands. We decide, not some doctor or Insurance company.
She is also on PEA, alpha Lipoic, Tumeric, acetyl carnitine and tons of anti inflammatory supplements.

@A MyChronicPainTeam Member
You are so sweet....

I wish I didn't have this monster for so long.....but that's the cross I have to bere till the day I die....
You actually made me cry...

If it was my hubby and me it would be different ...but because. we have been raising our autistic grandson since birth
.....we have some money....and it is used on him....

I don't regret raising him....for he is my reason for waking up in the morning....

THANK YOU for your wonderfully big heart....YOU are to kind....

Your sis in the RSD/CRPS war..

((((HUGS))))........<<<>>>

@A MyChronicPainTeam Member @A MyChronicPainTeam Member

I want to say THANK YOU too both of you....

Life is so hard for me right now...I had to relinquish my parental duties to my grandson to my husband..
He can sence how I feel lately it has gotten really bad.....

Thank you for being my friends....
GOD BLESS YOU 2...
Bev

Thank you so very much. I have had 11 spinal surgeries, the fifth due to trauma, my 3 level fusion in lumbar shattered 3 weeks after surgery. It took 3 subsequent surgeries to put me back together. That was life or death surgery. I went 3 years with Cauda Equina Syndrome. Diagnosed with 4hour MRI admitted, and prepared for surgery, the head of Ortho, wanted it treated as outpatient!!! I was discharged and went another year before I could find a surgeon to work on me. Two surgeries performed, First, Surgicaly breaking my spine at L1 due to 90% Hypnosis bent forward, waited a day and that L5 vertebrae causing Cause Eqina, had disintegrated. I had no vertabrae, a hole in my spine. He did his best to rebuild a L5. I broke my tibia early on with my lumbar surgeries. I wore a cast for 3 months! Guess what! After cast removed, my leg was mottled! I did not know or my ortho either. Went home 2 weeks my entire leg blew up from hip to toes twice the size and was red as a lobster. I was hospitalized for 3 days for pain. Omgosh the pain! Treated outpatient by my pain mgmt for a month. Second incidence, same leg after my huge surgery mentioned above. I fell afterwards and shattered my left knee. My leg blew up twice the size again, had to have emergency surgery but it was just a patch. Now I need a complete knee joint replacement because only wire wrapped around my knee holding it together. You all know why I am putting off, RSD fear of it setting in! What would you do? Another, I have extreme neuropathy due to permanent nerve scarring however I am having SI Joint major pain. I received an injection and it made the pain so bad I could not stand it!!!! Could that injection have caused the severe severe pain and was it RSD?
Please help, they are wanting to do radiofrequency next!

If developed once, meaning RSD, do you have it forever?