Fibromyalgia/CFS | MyChronicPainTeam

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Fibromyalgia/CFS
A MyChronicPainTeam Member asked a question 💭

I don’t know what to do. My old doctor of 8 years prescribed medication which was effective in treating my symptoms, but since I moved my new doctor won’t prescribe the same meds. I’ve she’s put me on a bunch of new meds which only made things much worse and even though I’ve explained to her how the new meds doesn’t work but only make things 10 x worse she just won’t prescribe the stuff that works. 😖

posted June 14, 2018
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A MyChronicPainTeam Member

We had the same problem when we moved. We played good little soldiers for six months of methadone...slept for six months! Got NOTHING done. Couldn’t even stay awake long enough time to,pay the bills! Went to our 6 month appt (had been there every month during this period) , and when she asked how it was going I sat up tall and told her that I had complied for 6 months, waiting to get used to the methadone, and I don’t like it. Not only did it do nothing for my pain, it kept me asleep all day.and night. She then put me back on the majority of my meds I had been prescribed and said she would never increase the amount that I was getting! So for the last year I have been more able to do what I need to do, and she doesn’t have a doped up patient. She can see the difference..so sometimes you have to go along with a new doc until they realize that what you are asking for is Wuality of life, not the medication. That is what we kept stressing, the change in our quality of life. Good luck!

posted June 18, 2018
A MyChronicPainTeam Member

Agree same here most Dr right now are hesitant or won't due to harassment and being threatened by the DEA due to the CDC guidliness that are hurting pain pts people are committing suicide any pain pts who has the ability we are having rally sept 18th 2018 in all 50 states go to don't punish pain rally. Com or don't punish pain rally FB group and join then go to your state page to find out rally venues times and what can do to help so for example I am from PA put YOUR STATE PLUS DON'T PUNISH PAIN RALLY AND join your state page your meds and quality of life depends on it write your senators stop these bills that they will be voting on soon severe restrictions to opioids if any and reason as well anyone on methadone , percocet, oxycodone, hydrocodone any opioid that can be diverted probably will take you off if haven't will in near future if these bills get past also DEA and president aottorney general sessions put restrictions on amt of these OPIOIDS being manufactured and distributed to pharmacies, hospitals and hospice clinics, that's why pharmacy didn't have the med to fill script and will probably happen more often hospitals don't have enough of med for surgery pts or traumas cancer pts dieing without comfort due to access for them as well difficult to get their medicine or can find due to shortages from their restrictions that's why o haven't been here busy getting ready for PA rally so anyone from PA Philadelphia rally sept 18th 11 to 1 and theirs one in Pittsburg their was one in Harrisburg capitol but person handling dropped out so don't know about that one if anyone wants to pick it up contact Claudia Miranda dont punish pain rally group one of the founders we all need to fight or we will all LOOSE access to OPIOIDS for pain of can't go can't be righting your government the CDC FDA department of health in your state ECT all can fight together I am suffering my methadobe taken away and my percocet in 2016 when guidliness came out and put on morphinecway below recommended 90MME I NOE HAVE TO GO FOR A TRIAL FOR STIMILATIR BECAUSR I HAVE TO TRY SOMETHING I am suffering from my CRPS and NEUROPATHY FIBROMYALGIA ARTHRITIS back and hips issues ect please we need to all stand together and fight should have right to take whatever works responsibly as we all have i myself for over 13 years at end of my rope make my / our voices heard hugs to all I am miserable today tired of it all

posted August 24, 2018
A MyChronicPainTeam Member

Thanks

posted September 13, 2018
A MyChronicPainTeam Member

Change drs. I've found that if you can't trust your primary dr, then you need to get a new one. When we have chronic pain, and we find something that works, if we can't rely on our drs to come through for us, esp if there's something that's effective then why not allow us to stay on it. Esp if there are problems finding solutions to our pain. Fibro is such an invisible illness that some people don't believe it's real. They also don't do enough research to find causes, treatments, but there are so many drugs out there for erectile dysfunction. I'm under the care of so many specialists, but I'm lucky to have a good neurologist. He has me on Lyrica. It is a cross drug-simply it helps many different things. But let me emphasize, YOU are the patient, you have to live with the pain, and if you aren't getting the treatment you need, which would be the meds you know were effective, then you have the right per HIPPA to good treatment. Switch drs.

posted July 17, 2018
A MyChronicPainTeam Member

Is your Dr a pain Dr? If not get one

posted July 4, 2018

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