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Although I've had symptoms sporadically over the last maybe 5-6 years, I've now had that formal diagnosis...if any of you fab & amazing peeps suffer from this, please could you offer some of your tips for coping at home & what you would do for the absolute awful Altered Sensations? I have them all down my right side & it's driving me crazy
I move as much as I can, wrap myself in a heated blanket & lie on that side...this helps but could do with more tips?? Air & touch feels strangely… read more
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Members rallied around someone newly diagnosed with fibromyalgia who was experiencing intense altered sensations and flare-up pain down their... Read more
@A MyChronicPainTeam Member arh it's an awful sensation to feel...that's how all this with the fibro started years ago...I do take pregabalin (Lyrica) and have done for some years...
Hope yr having a body kind day & thanks for taking the time to reply...much appreciated 😊🤗😊🤗😊🤗
Hi Amber.When I am in a flare everything hurts.The shower,the wind ,my teeth and hair follicles,and my body well,that throbs.That is the outside.Inside I have IBS.There are so many symptoms that come with this nasty fibromyalgia .These sensations you have are they like small muscle spasms continually up and down your back/side?I get them when I have done too much.Hope this is a bit helpful🙏🏻😀
Hi Amber , I know Fibromyalgia sucks Especially since it’s a hidden disease I have two grown daughters that don’t believe me and call me a drug addict it’s so hard when your loved ones don’t understand or give any support thank god 🙏I found this wonderful group hope u have a good day 🌷❤️🌹🌹✌️
Amber good for you , you tell him he’s very insensitive to others pain and discomfort Rusty should mine his manners
@A MyChronicPainTeam Member your ignorance is unkind & not appreciated here...if you are too narrow minded to be able to be compassionate & show empathy, then you're in the wrong group! Your personal opinion about what ya think about peoples suffering, says a hell of a lot about the kind of person you are & thats sad!
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