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About MyChronicPainTeam
Real members of MyChronicPainTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Else Have Arachnoiditis?

Does Anyone Else Have Arachnoiditis?

I need help

almost 2 years ago
A MyChronicPainTeam Member

Yep I know

almost 2 years ago
A MyChronicPainTeam Member

Nothing useful at the moment. Just living the dream....🤷‍♀️

almost 2 years ago
A MyChronicPainTeam Member

@michaydney no doctor has much of a clue for me some say do a spine stim some say absolutely not because the surgery alone would create scar tissue which worsens my issue as surgery and injcetions caused this to happen. There is no cure and even the fee specialists in the country admit “you are screwed” im sure its a similar vibe with you. I also belive spine stims (although some people feel they help) are a huge money grab for doctors to bill insurance, and are used as excuse to dismiss chronic pain pateints suffering without meds and many patients who have already gone through failed surgeries now feel pressued into this SCS surgery. The FDA just this week published a study its rather informative.

almost 2 years ago
A MyChronicPainTeam Member

Just looked up your condition..very similar but your spinal nerve pain is specific. Mine likes to take up residence everywhere. Sometimes all at once, and other times in alternative bits and pieces to keep me guessing. Are you able to get out of bed some days and limited walk? Hydrotherapy? I try when I can..

almost 2 years ago
A MyChronicPainTeam Member

Did they try a nerve stimulator in your spine? They didn’t think it would help me.

almost 2 years ago

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