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Real members of MyChronicPainTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
December 28, 2016
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Answer Summary

Members discussed several alternative treatments for chronic pain, with ketamine infusions emerging as the most commonly tried option,... Read more

Members discussed several alternative treatments for chronic pain, with ketamine infusions emerging as the most commonly tried option, particularly for conditions like CRPS and arachnoiditis, with one member reporting the infusions provided nearly three months of relief. Several members shared practical information about medical marijuana for pain management, including various forms like tinctures, edibles, and topicals, though experiences were mixed, with some finding it helpful while others reported it made symptoms worse or caused increased sleepiness. A recurring theme was the struggle to find adequate pain relief after narcotics either failed or caused hyperalgesia, alongside the frustration of being dismissed by doctors who attributed pain to psychological causes rather than addressing the underlying physical condition.

A MyChronicPainTeam Member

Yes I have Ketamine infusions for an incurable spinal disease called Arachnoiditis

January 7, 2017
A MyChronicPainTeam Member

Well, sometimes new and younger doctors have more information at their disposal. I know our medical services are different because we live in different countries. I formerly worked as a nurse and am attempting to move further up. I know I would not be able to tolerate floor nursing but hopefully I can do something else.
Re-evaluation of meds can be a good thing as long as they only change one at a time. I always have a drug dictionary nearby to double check everything. Yes, the pharmacy will only give you what the Dr. prescribed. They will do one-day comas here, but Germany is generally the only place to be put into a 5 day coma. Not cheap... They have just introduced an implant that works on the dorsal root ganglion and it is made specifically for CRPS so maybe..
Have a good low-pain night.

December 29, 2016
A MyChronicPainTeam Member

No coma here
CRPS is just very painful, but no cure and ☺no coma.
The cannabis you have liquids, edibles, smoke, and vaping. I was reading yesterday that the doctor I'm going to they make soaps and such for ppl that are being treated for cancer. It is called something like end of life care . They use marijuana in the soap cuz the people can't injest food so the put meds in the soap to cut back there pain and sensitivity.
I go for my first appointment today to see how the whole mediacl marijuana card works .

December 29, 2016
A MyChronicPainTeam Member

Hey thankyou for the feedback. In answer yes ketamine has helped immensely. I had lidocaine for 2 yrs and now Ketamine. It lasts nearly 3mths

June 22, 2017
A MyChronicPainTeam Member

Shan-I saw an article from July, 2016, when I googled Arachnoiditis entitled "New Treatment Gives Hope to Arachnoiditis Patients." Are you aware of this research? If not,You can read the article at https://www.painnewsnetwork.org

January 9, 2017

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