I also have type 2 with massive nerve damage. Mine is from my waist down both legs and feet. Started in 2007. Back then doctors knew very little about the disease. It was called RSD at that time. Pain is indescribable! Stimulators helps just a little and medical Marijuana helps me to get a few hrs sleep per night. Wouldn't wish this on my worst enemy.
Karen, talk to your Dr. about your symptoms and if they feel CRPS . it's a diagnosis of exclusion since there isn't any diagnostic test for this. Good luck
Yes, I have crps. It feels like trillions of bees singing, a hot branding iron, trillions & trillions of needles, hit hot skin, swelling.......
I have CRPS Type 2 in right leg. Diagnosed in March 2019.
The CRPS experience is unique to each person. There are varying degrees of CRPS.
Type 1 - no nerve injury (I was classified that for three years, then two injured nerves were found and fixed surgically).
Type 2 - nerve injury
It was also explained to me that it can be broken down by:
Definite - have all symptoms
Probable - have several symptoms (that's me)
Possible - have a couple
My CRPS experience includes: Allodynia, color change (red), tremors, Poor Thermoregulation, gut issues that are neuropathic in origin.
I don't talk about my pain. So I won't describe it
Treatments that helped me:
Spinal Cord Stimulator implant
Not sure if this helps or what you were looking for.
@A MyChronicPainTeam Member. That's very good advice. I've had CRPS since 2007 and back then most doctors had no idea what it was or how to treat it. People today need to educate themselves so doctors don't make their condition worse. Plus they should know the cost of treatment plans. Not any easy disease to deal with by any means. Be well.