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Good Evening..... Has Does Anyone Deal With CRPS.? How Would You Describe It?..

Good Evening..... Has Does Anyone Deal With CRPS.? How Would You Describe It?..

posted January 14
A MyChronicPainTeam Member

Karen, talk to your Dr. about your symptoms and if they feel CRPS . it's a diagnosis of exclusion since there isn't any diagnostic test for this. Good luck

posted January 15
A MyChronicPainTeam Member

I also have type 2 with massive nerve damage. Mine is from my waist down both legs and feet. Started in 2007. Back then doctors knew very little about the disease. It was called RSD at that time. Pain is indescribable! Stimulators helps just a little and medical Marijuana helps me to get a few hrs sleep per night. Wouldn't wish this on my worst enemy.

posted January 14
A MyChronicPainTeam Member

Yes, I have crps. It feels like trillions of bees singing, a hot branding iron, trillions & trillions of needles, hit hot skin, swelling.......

posted January 14
A MyChronicPainTeam Member

I have CRPS Type 2 in right leg. Diagnosed in March 2019.

The CRPS experience is unique to each person. There are varying degrees of CRPS.

Type 1 - no nerve injury (I was classified that for three years, then two injured nerves were found and fixed surgically).

Type 2 - nerve injury

It was also explained to me that it can be broken down by:

Definite - have all symptoms
Probable - have several symptoms (that's me)
Possible - have a couple

My CRPS experience includes: Allodynia, color change (red), tremors, Poor Thermoregulation, gut issues that are neuropathic in origin.

I don't talk about my pain. So I won't describe it

Treatments that helped me:
Physical Therapy
Spinal Cord Stimulator implant
Saphenous neurectomy
Gabapentin

Not sure if this helps or what you were looking for.

posted January 14
A MyChronicPainTeam Member

What does CRPS Mean? Complex regional pain syndrome????
Ob because all mentioned systems happen to me? All upper back especially shoulder blades.
Is that common?
Thx

posted January 15

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