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Real members of MyChronicPainTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

HELLO, HAPPY NEW YEAR!! I just wanted to wish everyone the best of luck, health and happiness. Happy New Year Many Blessings Michele

A MyChronicPainTeam Member asked a question 💭
R. CUCAMONGA, CA

Pain does not know about Holidays!!
michele

December 31, 2023
 · 
Reactions

Answer Summary

Members connected over New Year's greetings and the shared reality that chronic pain doesn't pause for holidays, though many found comfort in... Read more

Members connected over New Year's greetings and the shared reality that chronic pain doesn't pause for holidays, though many found comfort in the compassion and understanding of the community. Several members opened up about the isolating nature of invisible illnesses like lupus, the frustration of being judged by appearance rather than internal struggle, and the challenges of managing pain with limited medication options, including experiences with prescription scrutiny and sleep disruption. A recurring theme was finding strength through mutual support, with members offering practical suggestions like amitriptyline for sleep, sharing personal coping strategies, and expressing deep empathy for one another's loneliness, family struggles, and the exhausting reality of living with chronic pain.

A MyChronicPainTeam Member

Personally I like positive people as our own pain is not as bad when otter people share our journey
Hugs from Judyxx

January 5, 2024
A MyChronicPainTeam Member

Hi Lorraine, Did you know that most people judge you by the way you look. They would never give it a second thought that it is internal---like my LUPUS!! Do not worry about people--I found that out the hard way!! When we die, it says
Rest In Peace!!! I finally got why??? The one thing is you have to be half dead and then they will believe. WHEN IT IS TOO LATE!!!
LOVE Michele aka Mickey

January 2, 2024
A MyChronicPainTeam Member

Honestly, I think they were interest in the doctor that prescribed it to me. They were looking at me wondering, how can I be so sick. Lupus as you know, is an internal blood disease. It might show up on the skin during the summer. I do not feel so great and I can not sleep more than 4 hours before I am awake due to the pain. I have more than Lupus. They call it a soft tissue disease (connective tissue). I am wishing my mother was alive. She passed away 3 years ago and I miss her. Thanks for the support and warm thoughts.
Always Michele aka mickey

January 7, 2024
A MyChronicPainTeam Member

@A MyChronicPainTeam Member oh my stars, that must have been a shocker. I wouldn't think the FBI wastes their time on such. Any idea what instigated the visit? Gosh Mickey, you feeling ok? Glad they didn't mess with you.

January 7, 2024
A MyChronicPainTeam Member

Hello, You can count how many of the pain killers work!!!!! The narcotics are the
most useful but, they are few. I had an experience with the visit from the FBI &
the State of Ca. They came to my door and I requested to see ID. They were serious and I had them sit!! The first question: "Are you taking all those drugs"???? I was surprised I was ready for them "IT IS 3PM IN THE AFTERNOON, WOULD I BE IN MY
NIGHTGOWN, IF I DID NOT NEED THEM"???? The apology, came quickly they saw my law school degree and left my apt.. "We are sorry to bother you"!!
That must be the reason, for me attending law school. To help those who want to help themselves!!!! So, I am so sick, I am suffering beyond words. Keep me close
to your heart. Many Blessings
Michele aka Mickey

January 7, 2024

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