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Just had my 33rd surgery and my 16th RFA on L4L5L5S1 I cannot write more because of pain now. I will have to write more later Thank you

February 1, 2025
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A MyChronicPainTeam Member

Gr8ful8 Thank you so much for responding. My life is crazy. I often wonder what Gods plan is for me because I must be getting ready for a miracle. I cannot take much more. I am so sick. I do not want to say anything else right now. I will let you know how it is tomorrow. Frack

February 2, 2025
A MyChronicPainTeam Member

I also cannot sit with pain, it's been like this for over 30yrs at least. I have to lay flat after doing my housework. I've got used to it now. It's lower back herniated discs due to EDS my discs pop out everyday. I then have to lay on my stomach to click them back into place.
I put a timer on when I do art. I don't own a t.v laptop or computer. I listen to audiobooks so I can lay with many cushions helping support. I understand how irritating it can be, when I was younger I'd get extremely irritated as I had a very stressful job I needed to give my full attention to clients that were in chronic pain and palliative care. So I learnt getting irritated did not help my pain and it did not help my job. I needed to keep 100% concentration on my clients needs first and foremost.
This helped enormously as now I don't get irritated if I'm unable to do something, it is as it is. All I can do is accept what I can do accept what I can no longer do and just be
With love Peps 🥀

September 1
A MyChronicPainTeam Member

Gee you guys. The recliner is the most comfortable place for me. It takes the weigh off my spine.

May 22, 2025
A MyChronicPainTeam Member

@A MyChronicPainTeam Member
So sorry...
For myself, I haven't been able to use recliners since my first disc herniation when they found it inoperable because of the DDD that was at some level in every part of my back. The Dr explained if he fused it, there was a 90% chance I'd have a cascade failure throughout my whole back! It was a "everything changed" kind of day back in Jan 2006. I already had an undiagnosable nerve issue that mimicked MS, but wasn't so no one had a treatment for it. Finally got a diagnosis in 2019, but insurance didn't cover monthly treatment for 15 months. Only for emergencies where something crucial was threatened, like a spastic diaphragm in May 2019, caused by this disease. O²% was dropping in my blood as I struggled to breathe. Then they gave me the IVIG, but only for 4 days inpatient.

None of that really helps, buts sometimes there's nothing else to do.
♾️🤗s2️⃣U&🙏🏻
🤠Larry 🐏B "🤓Lou⚾" 👣✝️❤️

May 22, 2025
A MyChronicPainTeam Member

@A MyChronicPainTeam Member You had to have another? Hope you get to feeling better

February 2, 2025

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