Radiofrequency Ablation | MyChronicPainTeam

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Radiofrequency Ablation
A MyChronicPainTeam Member asked a question 💭

I’m at my wits end. Having tried literally everything there is and I’m now going to enquire with a neurosurgeon about this radio frequency treatment.
Has anyone with peripheral neuropathy tried this?
Would you recommend it?

posted August 5, 2020
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A MyChronicPainTeam Member

I've had it done 2 times works pretty good but still have pain just not as intense.

posted November 11, 2022
A MyChronicPainTeam Member

I've heard good things from a few people who were getting ketamine with me in Florida but then they were getting ketamine infusions with me so I guess it didn't work for them but it could be the 1 thing that helps you. I wish you lots of luck. Let me know how it goes

posted August 5, 2020
A MyChronicPainTeam Member

Ablation helped my worst pain a lot. I was stuck 10 days in the hospital on a morphine drip. Ablation was all that got me out. Had 9 done in 2018. Another 3 in 2019. Unfortunately my peripheral neuropathy isn't my worst pain. Probably because so much nerve tissue is gone in my feet. Ankle down was 0% at 2019 diagnosis. Since treatment passed 6 months, my feet are at 12% & my thighs are back from 50% to 100%, but I'm no longer needing as much wheelchair time. I'm only using a walker to leave my room! Major gains for me! No more gains showing, but it's maintaining the gains. For an incurable, progressive disease, that's quite good.

In the end, I've not gotten relief all the time, but certainly in my worst times. Myself I have a rare & unnamed autoimmune disease. I've had it over 20 yrs, but it was only defined in research in 2018. In Chicagoland I was patient #20 in Feb 2019 & confirmed in testing on 3/29/2019. Loyola dropped research because of Covid in Nov2020. The primary symptoms are Chronic Idiopathic/Inflammatory Axonal Polyneuropathy. In general the neuropathy is present at some level in each limb & extremity. My legs & feet are worst on me, but the worst symptom of muscle spasticity & spasms for showed up in 2007-2008. Without an identified disease, the neurologist treated the symptoms with Clonazepam very effectively for 10yrs. Though symptoms are repressed, damage isn't, unfortunately. If it's a possibility you have it, there are 4 remaining hospitals still doing research in the US. I'm not sure of their locations, but I think one is the Cleveland Clinic or Hospital associated with them. I don't know your location or name, so no idea if you're even close to them.

Hopefully, some part of this was helpful.

🤠Larry
🐏B
🤓Lou⚾
👣🌈✝️🔥❤️

posted March 31, 2022 (edited)
A MyChronicPainTeam Member

I am scheduled for this procedure at the Allevio Pain Management Clinic in Toronto. Medications, alternative therapies, and cervical spine surgery have been ineffective in pain management. Healthcare professionals have told me that there is no pain management, that I have to learn to live with it and practice cognitive behavioural therapy (which I already been doing most of my life, ineffective) I am told this procedure doesn't work for everyone, but if it does it could last anytime up to 2 years. I've already tried nerve block and trigger point injections with no relief but I will try this procedure as it is covered under Ontario Health. There are other expensive treatments not covered by Ontario Health/Private Insurance - Botox, Ketamine infusion and PRP but these are not guaranteed or yet proven to be effective. I have already spent thousands out of pocket over the past 40 years on specialists, therapists, and devices/pillows seeking pain relief as covered services have been useless.

posted February 7, 2022 (edited)

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