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I'm not saying I'm suicidal, but I do wish I could just die rather than live in chronic pain and treatment resistant depression.

June 7, 2022
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Answer Summary

Members responded with deep empathy to someone expressing difficulty wanting to be alive due to unbearable emotional and physical pain,... Read more

Members responded with deep empathy to someone expressing difficulty wanting to be alive due to unbearable emotional and physical pain, sharing that many of them feel the same exhaustion from years of relentless suffering, with several describing their pain journeys spanning decades and the isolating reality that those without chronic pain cannot truly understand. Several members offered practical support, including the importance of clarifying to therapists the difference between passive death wishes and active suicidal plans to avoid involuntary hospitalization, information about clinical trials for vagus nerve stimulators for treatment-resistant depression, and suggestions for investigating autoimmune diseases or conditions like idiopathic intracranial hypertension as potential causes of unexplained eye pain. A recurring theme was the universal grief of lost lives and relationships, the constant battle between survival instinct and the desire for relief, and the powerful comfort found in knowing you are not alone in your suffering, with many members emphasizing that sharing pain honestly helps others feel less isolated and gives meaning to their struggles.

A MyChronicPainTeam Member

I am in the same boat as you are. But, the thought of what that would do to the people who Love Me! I do understand, I've been living with CRPS/RSD some 2000. And, it is not Pretty, it is a constant burning pain that you can not get away from. A Breeze across my legs sends me into Hell, a shower feels like someone is hitting me with a wire brush. But, I couldn't do that to the people I love. My suggestion is that you need to find someone that you can talk to Professionally.
My thoughts are with you and your family and friends.

August 27, 2022
A MyChronicPainTeam Member

Cathy, thankyou for your kind words.

September 17, 2022
A MyChronicPainTeam Member

Thankyou Cathy. I agree with everything you just wrote. Right now my medication is being changed but medications don't work for me anymore so I dont know why I even use them. I'm looking at ketamine treatments but I have to get off of the benzodiazipene, klonopin before I can begin. Benzos interfere with the anti depression action of ketamine. My friend did ketamine treatments while she was on a pretty substantial dosage of a benzo, Ativan, and the treatments didn't work. I just started going down on the klonopin, and my sleep is being affected. I'm still very depressed, extremely fatigued, and I always feel like I haven't slept even when I sleep 8 or more hours. I'm just getting through day by day. I don't get out of the house much and do pretty much nothing most of theday and night. It's a very difficult time.

September 17, 2022
A MyChronicPainTeam Member

I think we forget all we have gone through. We forget the pain that is not normal. We forget the long doctor visits, only to be disappointed. We forget the relationships that go south. We forget (sort of) the times we have been left out by choice or not.

WE LOST OUR LIFE. Grief and exhaustion are normal. As long as it's not constant. But if I was "normal", I would sure have issues if this was my life. So, now it IS my life, and guess what? This takes a toll on us.

We are sick and tired of being sick and tired. I'm so sorry and wish there was something I could do to make you feel better. I'd clean your house ... which makes any woman feel better! :)

Your feelings are normal. What you decide to do to make it better is your personal decision. I wish you the best!

My son finally got a motorcycle in his 30s. It's gone, but I had to get a picture!

September 16, 2022
A MyChronicPainTeam Member

JME, Thankyou for taking the time to respond to me. I appreciate it.

August 27, 2022

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