Self-advocacy becomes a necessary skill when living with chronic pain. Many people with chronic pain report that they must repeatedly remind their doctor of their pain levels and needs. Others say that they stand up for themselves to pharmacists, pain management clinics, even family members who don't understand pain. Advocating for yourself can feel lonely, yet so many people experience the emotional toll.
On MyChronicPainTeam, the social network and online support group for those living with chronic pain, members talk about a range of personal experiences and struggles. Advocating for yourself is one of the top topics most discussed.
Here are some conversations about advocating for yourself:
• "Does anyone else have people that ask them 'how can you be in pain with medication?' I try to be patient and educate saying that not how it works, unfortunately."
• "My world has just been turned upside down. [My doctor] said to me 'your injuries don't match your pain' and 'I think you need to see a psychiatrist.' I cannot take the pain..the emotional toll."
• "If you can find a good pain management doctor it will be so much better for you. The good ones are great once they get to know you and see that you are not some pill seeking addict. I have found that the better they are the busier they are."
Here are some question-and-answer threads about being a self-advocate:
• My doctor decided since I had physical dependence that I was an addict and she discontinued my medications and wanted me to go to methadone. What can I do?
• National pain report...a must read for everyone fighting back for medication!!!!!
1 in 12 Americans Lives With Debilitating Chronic Pain
Can you relate?
Have another topic you'd like to discuss or explore? Go to MyChronicPainTeam today and start the conversation. You'll be surprised just how many others may share similar stories.
Feel free to ask a question here.