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you know that phrase? “Out of spoons”
Or maybe you’ve heard people call themselves “spoonies”?
(It’s not the same as being “spoony,” an adjective which means “silly.”)
*Spoonie* is a noun, and folks with chronic illness use it.
Spoon Theory was created by a woman named Christine Miserandino, who used spoons to represent units of energy—the energy we expend throughout the day doing the simplest of things.
Getting out of bed.
Taking a shower.
Eating breakfast.
Getting dressed.
when every… read more
My new mantra is This is ur life deal with it. Came to me when Fannie my fur baby demanded a walk and my pain level was 8
It kept me going or walking for longer than most long walks. Usually… read more
I keep a notebook and pen at arms reach for noting when I take meds and what weather is like and try and see if there is a pattern to my pain. With MS it changes all the time. I do know that when… read more
How do you get your motivation back after a long fight with pain. The feeling of giving up when nothing seems to go right? When those you talk to say they don't wanna hear it anymore? When you have so much that needs done but your body won't cooperate and you feel overwhelmed.
Hello, and sorry your suffering because I suffer so much it is for 2 or 3 people
The pain, I have to take a narcotic, and if they do not work. I go to 911 because I can not control the pain. I have… read more
If it offends you. Sorry it's science. This is my life story all true if it offends you to read imagine living it.
Has anyone advice for me like a tasty savoury meals.i can eat. Thanks 😊
Thanks Terry miles. I thought your message were lovely too. Thanks 😊
How do I respond, if at all, to this message? This comes from someone I love. I do not want to hurt them, but they just don't seem to understand.
I would respond to this person that their response is an oversimplification, and may work for some forms of illnesses. But, when it comes to all of our illness (because I know there are those of us… read more
Also, I cannot lay flat. I have to sleep upright in a recliner. i don't even own a bed anymore it's been years since i've been able to lay flat. anybody else have this challenge? i met one other person here.
I can only sleep on my side. I take 2 trazodone and it helps me sleep most of the time
Not sure how much more detail I can be If you meditate on a regular basis you know what i am speaking of (even if it were a short meet)
Studies show it helps. I lay down and calm my mind, taking very deep breaths and exhaling more than inhaling. Stale air is in the lungs and sometimes clearing our breath and getting good air to our… read more
I barely fully recovered from the flu after about two weeks. Of course I got secondary infections because that's how it goes, right? Now, with the possibility of a national lockdown, I am torn between being alone and hoping I don't need help and flares don't happen, or going to my new boyfriend's home just in case.
Thoughts?
Rainbowbrain, I don't know why I forgot the essential oils. In the diffuser I understand that they are really helpful! I've been using an essential oil spray until I can get a diffuser. I'd also heard… read more
Does anyone feel like all you do is get in the way and slow everyone else down? As though everyone wants to get somewhere yesterday and you can't do so until tomorrow and so they are all ready and waiting at the door and you sometimes just end up passing on the trip, or activity, because you are still trying to get on your shoes and coat, so to speak.
Yep. I’m of no use to anyone so out of sight, out of mind. They forget that we gave our whole lives to them.
